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Hi I am new to this forum- my name is Allison and after 3 months of investigation I have been diagnosed this week with the above. Advised it is rare & only 900 in the UK. Have been put forward for assessment for a transplant but next week start on...
I was diagnosed with MDS earlier this year. I live alone and have no close family or friends. Is there a local support group in the Bath area? I'd like to meet some other sufferers of MDS or any other type of cancer. I'm very aprehensive about the future...
I was diagnosed with Stage 4 cancer of the jejunum in April 2026. I am finding it very hard to find any "specialist" for this cancer, as it is deemed very rare. I want to be sure I am on the right pathway for treatment. Currently going through chemotherapy...
New to the group today with this rare type of cancer diagnosed since last October. I've been on hrdroxycarbomide since then with double dose for three out of seven days. Feeling fatigue and starting to get pins and needles in hands and feet, which...
Hi my name’s Shena I was diagnosed with peritoneal cancer last April, I was told that the cancer is in its final stages and has spread to my lungs I am being encouraged by the oncologist to have chemotherapy although it’s not being offered for several...
Hello everyone. I was diagnosed with polycythemia Vera 11 years ago. Fortunately I had 9 years where it had very little impact on my daily life. 2 years ago the symptoms worsened, the itchy skin was there alot and was unbearable. Was on hydroxyurea, a...
Recent appendectomy revealed LAMN, (low grade appendiceal mucinous neoplasm) Looking for advice
Hi everyone, I’m new to the group and wanted to introduce myself. I'm Marcus and I was diagnosed with Polycythaemia Vera when I was around 16–17 years old, back in 1989. Over those early years I had numerous treatments, including radioactive phosphorus...
I had an emergency full hysterectomy with Bilateral Salpingo Ooephaectomy at the end pf August due to excessive bleeding post menopause and pre cancerous cells. The contents were sent to histology and I was shockingly diagnosed with a rare cancer, Granulosa...
Good evening, I was diagnosed with ET 3 years ago and since then just been taking a asprin a day but my platelet level has risen every month and now my hematologist wants me to start doing weekly injections. Is anyone else taking these and what should...
