I now feel comfortable enough to stay with this forum so will say abit about myself I am a 61 year old granny of two and work part time,I have other health issues like Fibro,so am use to being unwell with something many don't believe exists,many ways my Lymphoma is like that because people can't see it,I spent over ten years trying to get work managers to except I have Fibro,but now just say the word Cancer and they can't do enough for me even if they can't see it. At the moment I'm off work because I'm so run down with no energy a long with a chest infection,this has given me time to try and get round my diagnosis.
Hi again Noddles and it's good to hear that you feel comfortable to stay on the forum.
The activity in the Lymphoma groups especially in the CLL group tends to ebb and flow, this matches the rhythm of how living with a Low-grade non-Hodgkin lymphoma works. People may not be active on the site when life is moving on when there are no issues but come back in when 'something' turns up......... but I will always be around to help out as best as I can.
I am now 67, 4 granddaughters and retired (basically due to how my condition progressed back in 2011 at 55).
It is unfortunate that the word Cancer has to be taken into a conversation to be taken seriously with regards to health...... but your have now entered the world of The Equality Act and The Disability Discrimination Act.
Look after yourself and as always you will always find me in the groups.
You are slowly going to develop a rhythm or better, an understanding as to how your body now works…… with your body and understanding slowly developing coping strategies to live with this.
The only shots I had over my years when I was teaching and living with my developing condition were my Flu and Pneumonia but I quickly understood that my immune system was always going to be fragile so was always balancing work and rest along with a healthy diet and regular exercise.
In my teaching job winter bugs were part of life but I understood that my immune system (like yours now) was fighting my cancer 24/7…… it was like it was holding back a bug door like in a film and the baddies were trying to break the door down……. but as my immune system was so busy simple little bugs got in through an open window behind me so it’s learning to look out for infection risks and dealing with them quickly….. to the point my GP gave me emergency antibiotics to have just in case.
But as I have said I did a full teaching timetable for 12 years plus the hours of prep and narking at night and weekends…… and did this with only about 6 hrs sleep…… so a long way to answer your question….. you will learn how to live life allowing for your diagnosis but not letting it define you.
