NHL Marginal - just diagnosed

Hi Norjoy , I had B cell lymphoma , High grade , but I wish you well and hope you're treatment isn't to harsh on you , I finished my treatment on September but still on medication , I hope you have lovely Christmas Xx

Thank you for that. I understand that I’m to have radiography but will know more next week. 

Hi Norjoy , For my treatment I only had chemotherapy , but it was very intensive , I'll be honest it was hard going but I got there , I hope you're radiotherapy goes ok , X

Apparently, as it’s confined within my lung, that I’m either having low dose, or high dose. It was a relief tbh as, initially it was thought I had lung cancer. Whew !! 

That is good news , I was told for long enough I had a sore back then physio said I didn't the pain was all in my head , so it came as a massive shock to be told I had a rare aggressive spreading cancer.. I'm happy I kept the treatment up , and I'm going to have a fab Christmas with my 2 boys at the moment their in care as I'm not fit enough to look after them but getting them home for a few day Xx

What good news about your boys, Jean. Have a great Christmas. Sorry to hear of your battle to get a diagnosis.  I couldn’t fault my route to diagnosis. But it took 10 weeks of CT scan- PET-SCAN and broncoscopy. I don’t think anyone can imagine the stress whilst waiting, though. I lost 7 lbs in weight ! I feel very fortunate. 

I was finally taken into hospital that Sunday, It took them till Tuesday to do a MRI on me didn't work as they wouldn't listen to me I can't lie on my back , Wednesday another MRI followed by a CT Scan , was told I had a mass at the bottom of my back attached to my spine , Thursday CT Scan & biopsy , 10 day later I was told then the news and transferred to a hospital 20 miles away from where I lived , Queen Elizabeth Hospital was fantastic , the staff was brilliant , try and do what I did take 1 day at a time Xx

What a nightmare for you. I’m not worried any more as the more I read about NHL the more I realise how treatable it is. As I was told when I did eventually get the diagnosis. Also amazing how many types there are. We’re lucky to have a health service that’s free so at least we don’t have the additional worry of how to pay for our treatment? 

That is so true , in total I spent 16 weeks in hospital , So I'd hate to think how much that would cost , treatment plus being a inpatient.. The saddest thing was not having enough time with mum before she passed , although me & my sis was with her at the end , hard on myself as the last time I saw her was Mother's Day & with COVID only 1 person could get in the care home & that was sis , then in May I ended up in hospital & asked sis not to tell .. Xx

You’ve really had a very difficult time, Jean. It sounds as though your sister and you are close and she’s very supportive. Sad about your mum. We never know what life will throw at us, that’s for sure. I always say that life can turn on a sixpence ?  All the very best to you for the New Year and have a lovely Christmas with your boys.