Hello i just been diagnosed 2 weeks ago with Non-Hodgkin lymphoma low grade mainly and a wee lil bit of High grade . I was told i was having chemo which then was cancelt and then was told they will take my spleen out instead and treatment after ,Feeling lost as they dont tell me muchwhats going on
Hi Covenwitch73 and welcome to our corner of the Community and sorry to hear your diagnosis. Getting clear I formation can be challenging at times, my spleen would as well be put as it no longer functions
Do you know the exact type of NHL you have?..... this always helps connect you with others.
On the whole NHL is very treatable with good results.
In way of some encouragement. I was diagnosed in 1999 with a rather rare and difficult to treat Stage 4a Low Grade Cutaneous T-Cell (skin) Non Hodgkin’s Lymphoma. I was told “Mike, I am sorry to tell you that this type of NHL is incurable, yes treatable but you will never be in remission”...... but after years of various treatments in September 2016 I was told I was in remission for the first time in 17 years - and I am living the dream...... and eventually you will as well.
Keep posting as we are here to help.
Hi Covenwitch73.
Sorry to hear your news.
Just wanted to say hi. I'm pretty new here too. sending best wishes and bags of positivity.
Gail
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