Diagnosed today with Waldenstrom’s Lymphoma

Hi KaziB, see your original post was 3 months ago, hope you’re keeping well. I was diagnosed March 2016. Platelets we’re very low and the viscosity of my blood was high. So much, that I had to get plasmapheresis before I started chemo. Plasmapheresis is a doddle and you feel great for 24 hours after it, a real boost, nothing like getting new plasma. The next 6 months I received DCR treatment, which was quite normal at the time, there’s now Ibutrinib and other new stuff. Good news is that due to advancements made, your more likely to die with WM and not because of it. My treatment was successful and I’m now on ‘watch and wait’. I get blood checked every 6 months and apart from it slowing me down and tiredness, I’m fine. I even forget I have blood cancer. Take care, enjoy life and welcome to The Wallies, we’re a very rare breed. 

peace and love Brian