Tingling sensations - annoying

Hi Adrian

I had this too!!  Sympathies on the lumbar punctures I remember them well.  I had Follicular NHL in the stomach, bones and roof of mouth that went through the sinus area and up to the optic nerve.  I had the tingling you describe and also ear-ache.  I put it down to the fight going on in that area.  I asked what happened to the area left when the tumour had gone.  They said it would all fall back into place :) but with the ear-ache they said the pressures in that area could have been affected.

After 3 RCHOP the tumour in my mouth and stomach had reduced by 70% and after a further 3 RCHOPS the one in my mouth has gone and also in my bones (the lumbar punctures worked).  I have 1 - 2% remaining in my stomach but that's it.  Hang on in there.  Take Care San x

Thank you San

Your comments are a big help. Have scan next month so will see what's happening.

All the best

Adrian

Could the tingling in your nose be due to the nasal hairs coming out?

I found my head more comfortable when I kept it shaved short-ish - could give that a go, if you're comfortable doing so and haven't already?  Also means you can rub in moisturising cream, which may help with itches.

Possibly so, I had not thought about losing nose hair also. Although it is worse the first week of a cycle then eases slightly.

I will be revisiting the barber again shortly and will give the moisturiser a try.

Thanks for the advice

Hi Adrian,

I hope you don’t mind me hijacking this and messaging but I think I’m similar to you - Nhfl, lump on roof of mouth and my sinus/nose area is blocked, starting off with months of ear infections. I’ve been waiting months for results and a pet scan which is now due in 10 days but I’m petrified. Any insight/experience would be appreciated. Thanks x

Hi Maam, you may notice that this thread is over 8 years old so there is a good chance that the member is no longer active on the site.

As always the best way to put questions out to the wider group is to start a new thread ((hugs))