Hi there,
I'm new to the group.
I do have a question. I was diagnosed with low-grade follicular NHL a few months. In the last few weeks I have been getting night sweats but I wouldn't say they are especially severe (I have had bad night sweats in the past for other reasons).
My concern is that I'm not sure how severe night sweats are actually likely to be and whether they are indicative of just high grade NHL or can be for low grade as well.
I'm currently on watch and wait but not due to see my consultant for another 6 weeks. I don't think I've had a fever and although I've lost a few pounds recently I think that may be due to a bit of worry,
Best wishes to all
Hi TryToBeStrong and a warm welcome to this corner of the Community although I am sorry to see you joining us. I am Mike and I help out around our various Lymphoma groups.
I don’t have Follicular Lymphoma but I was diagnosed way back in 1999 at 43 with my type of rare, incurable but treatable type of Low-grade non-Hodgkin lymphoma eventually reaching Stage 4a in late 2013 when my NHL was then presenting as a more aggressive type of NHL so although my Lymphoma ‘type’ is different I do appreciate the challenges of this journey rather well.
Night sweats can happen with any of the 60+ types of Lymphoma. I had no Night sweats over my first 16 years but 6 months after my last treatment was finished I had a week of bad Night Sweats and honestly we had to change the bedsheets twice a night….. it was bad.
In the early days on Active Monitoring (Watch and Wait) you should always check in with your clinical team when your symptoms change…..
