Non Hodgkin’s lymphoma , possible 3rd time having treatment

Hi again Roxy123 there is no one size fits all in this.

I have a different type of incurable Low Grade NHL diagnosed in 1999 and over my first 14 years the length between treatments did become shorter and shorter eventually reaching about 9 months…… but my last treatment in Oct 2015 put in me remission and I remain in remission to this day…… and ‘the end’ is not round the corner.

Back in late 2013 my condition became very aggressive and was showing as a different aggressive fast growing type of NHL and I was told that the treatment plan was the last tool in the box and if it did not work I would have a few years……. But it worked….. and the best thing is that over the past 10 years a few new treatments have come on line so I now have a fall back

In your own works - keep strong ((hugs))

Thanks for the positive response . I’ll await the scan results and take it from there . Appreciate your time as always 

Sorry to hear of the flare up. One thing to bear in mind is that we are not in a static medical state. Advancements are continually made. New therapies are introduced. New combinations arrive. They become increasingly effective and normally less toxic. Existing drugs are re-purposed. There is CAR-T Cell therapy and even stem cell transplants.

   On a personal note, at immediate post-treatment relapse I was assigned an "extremely poor" prognosis. 15 years ago. That prognosis dropped three additional times. A second relapse and two additional cancers arrived. I am still here and delighted to be anywhere.

I say chin up and give it a go. Life is worth living and cancer is worth fighting.

Thanks so much for your reply . I totally agree that the treatments are changing and becoming more effective , with new combinations being discovered all the time , I should hear this week on my CT scan results . I have recently started a new job before Xmas , so another worry is not receiving sick pay while receiving treatment . I’ll keep you all informed . Take care everyone and united we can beat this x