I've just finished my 6rh load of RCHOP and am finishing the course of tablets. My anxiety levels are through the roof waiting for my ct scan date. I've got the date for heart scan. And finally getting bad tooth removed.
How long does it generally take for results to come back after scan? Hoping it could be a good early Xmas present.
Last chemo was November 3rd.
Hope everyone is doing good and keeping safe.
Hi again Gruffalo and good to hear that you are just about out the other end of treatment.
Post treatment scans are normally at around 6 weeks post treatment as they need to let the residual effects of the chemo to dissipate and reduce the possibility of false positive scan results.
From my experience scan results can be available anything from a few days, but the longest I have waited was a few weeks as the scans had to be put in front of the weekly Multidisciplinary Team (MDT), this was mainly due to me going on to have Stem Cell Transplant so some carefully planning had to be done, infect my scans were sent to London for a specialist in my type of NHL to give advice on the best way forward..... this took some time.
I have been on my journey for over 24 years now so lost count of the scans I have had, most were good but for me some were bad as I relapsed a good number of times over the first 15 years.
In the early days I sat with my great CNS and she was very honest “Mike, you can stress and fret as much as you want when you are coming up to scan time but the reality is you can throw all the stress and anxiety in the world at this and it won’t make any difference to the outcomes but the one certainty is - stress does make you ill…… control the battle between the ears and only worry when you are told there is something to worry about”….. and she has been spot on over all these years.
I found this article very helpful
What Is Scanxiety and How Can You Manage It?……. Choose Hope
The first time you read or hear it, “scanxiety” may look and sound like a funny word. However, when you are going through it, there is nothing funny about this very real condition. From the first MRI following a doctor’s suspicious discovery during a routine exam to the annual PET scan years after an initial diagnosis, the fear and worry that accompanies imaging appointments can take a significant toll on your emotional and mental wellbeing.
Fortunately, you can take steps to minimise and cope with the sometimes-overwhelming emotions you feel.
Acknowledge your Feelings
Don’t try to ignore the way you feel, as this can actually increase your anxiety. Instead, recognise and even embrace your scanxiety. This first step empowers you to take action, move forward and manage your emotions, helping you find peace and feel more in control of your own life.
Talk about It to the Right People
Venting your fears and frustrations to people close to you can be a wonderful way to release stress and gain vital support. However, if you have folks in your life who tend to exacerbate your worries or load you up with even more concerns (and really, who doesn’t have that one friend or family member?), avoid sharing too much with them.
Practice Mindful Living
Ancient Chinese philosopher Lao Tzu said, “If you are depressed you are living in the past. If you are anxious you are living in the future. If you are at peace you are living in the present.” Look for ways to live in the moment. Hug your little boy and inhale deeply, noting the mingled fragrance of fresh earth and shampoo. Stroke your husband’s face and think about the way his soft stubble brushes your hand. Savour a particularly flavourful meal. Relish in the here and now.
Distract Yourself
Find ways to take your mind off the upcoming scan, at least for a while. Dig into a novel or binge watch a series that completely engrosses you. Turn up your favourite music and tackle a chore you’ve been putting off for too long. Hang out with that one friend who has a gift for making you laugh. Schedule some time to enjoy your favourite hobby without interruption. If you have trouble letting go, imagine setting your worries in a “to do later” box and tell yourself you can pick them up when you’re done.
Ask Questions
Sometimes, the unknown is the greatest instigator of anxiety. If you are unclear about anything – from what to expect during the scan, to when and how you can expect to receive your results, to what those results might mean - don’t be afraid to ask your doctor. Having a well-defined understanding of what you will or might experience allows you to be better prepared and can even ease your mind.
Plan for the Worst Outcome…
Along with knowing what could possibly come of your scan, creating a strategy for the worst case scenario can improve your sense of control. By no means should this be perceived as giving up or being resigning yourself to bad news. Cancer can make you feel powerless, but creating a basic action plan just in case can help you regain your power as well as your optimism.
…but Visualise the Best
Your mind is more powerful than you might realise. Visualisation and guided imagery have been shown to improve your mood, control symptoms or side effects and even boost your immune system. Imagine yourself receiving great news after your scan. Allow yourself to experience the feelings of relief, gratitude and elation. Think about these things as though you are remembering them. Seeing it in your mind’s eye can give you the encouragement you need to overcome your scanxiety.
Highlander ((hugs)) sent.
Hi again Gruffalo and this is great news.
As for the Lung nodule, I had one appear a month after my second Stem Cell Transplant.
It was fully checked out, they were going to biopsy it but the surgeon said it was best to monitor it…… 8 years on it has not changed and has not caused any issues to the point it’s not now monitored.
I say it’s time to put this and your Lymphoma on a high shelf and get on with life.
Lymphoma Action actually run a very good Lymphoma Focused Live your Life Course that is a peer-led self-management course where you can talk with others and get tools that will help you ‘live’ the post treatment world.
It’s time for you to define how you are going to live life…… rather then let Lymphoma define it for you.
((Hugs))
You may find it helpful to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment milestones.
