Hello everyone, My 60 year old husband was diagnosed with Angioimmunoblastic T-Cell lymphoma last November. He went through 4 rounds of Chop and 2 rounds of Ice Chemotherapy. He underwent an autologous stem cell transplant (after BEAM conditioning therapy) on 12th April 2022. He is now day +63. He was admitted to A & E last week with high temperature and shivering due to infection. After 3 days he has been discharged with oral Antibiotics. Could anyone tell me if its normal to get infections after stem cell transplant, and also if this is what we should expect for a while until his immune system is stronger? He also has very painful/numb feet, due I think to the Chop Chemotherapy. Does anyone have experience of this and also if his feet will recover? All advice is greatly appreciated. Many thanks
Hi Tuliplover and a warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.
I was diagnosed back in 1999 with my type of rare, incurable NHL (CTCL) Stage 4a so although my Lymphoma ‘type’ is different I understand the challenges of this journey well….. especially as I have had two Allo (donor) Stem Cell Transplants.
Infections are entirely normal - you can hit my Community name to see my story but I am over 6 years 8 months out from my second Allo SCT and in this time I have been 7 times back in hospital (40 days) with Chest Infections, Lung Fungal Infections, the RSV Virus, Pneumonia x2, Neutropenic Sepsis x2, A Fib and a heart attack…… but I remain in remission and doing great.
My head SCT Consultant told me that going through a SCT was like doing a boxing match and a marathon every day I was in hospital and this was done without any training. So think about your husband doing the London Marathon without any training and you had to finish it as his life depended on it……. this is the journey he has been on.
We actually do have a dedicated Stem cell transplant group and you may find this link helpful Life after a SCT - A Survivor's Guide.
Happy to chat and answer questions.
