Hello everyone, I had my second R-Chop (Chemo & Immunotherapy) a week ago. 33% done. The tumour is shrinking and I’m due to have another PET/CT Scan Friday to see how things are going. They thought that they saw something on my kidney but it did not show up on the MRI or PET Scan. It showed on the CT Scan. I said as those scans were 6 weeks old and I’d had 2 treatments before they did a kidney biopsy I wanted to make sure it (if anything) was still there. My GP told me that was wise.
secondly, I thought it was the clinical trial drug but I’m getting a very rapid heartbeat average on moving 120 bpm sometimes higher if I do the hoovering and resting average 79bpm.
im also getting a whoosing sound in my ears which GP says is blood pressure.
and a dry cough - no temperature.
has anyone else experienced this please ? And ways to cope ?
I’ve now lost all my hair but it will grow back but this heart situation is worrying me.
Hi Debbie, the body goes through a lot during treatment
Dry coughs came and went for me. The throat is very sensitive during treatment so make sure you are drinking lots of water to keep yourself hydrated and this should help the cough.
Whooshing sounds and hearing issues can happen but for most this clears up once treatment is finished and it’s all out if your system….. but unfortunately my hearing problems are permanent.
Rapid heart rate can also be an issue with many of these drugs………you have talked this problem through with your clinical team as they do need to check this out.
I am actually on medication for life as I now have A Fib so am on blood thinners and beta blockers.
Thank you so much as always, im sorry re your hearing. I’ve not talked it over with the MDT Team only my GP but I think you are right I should. Im drinking like a fish 2 litres a day although not last 2 days. The A Fib caused by the chemo that’s awful, im so sorry. Yes, water does help the cough. Did you get pain at the base of your spine. Im on a pretty hefty dose although blood cell was low for 2nd session so they had to reduce it. Thank you for all your support Mike, I really do appreciate it.
All is fine now and my treatment ‘left overs’ are all controlled and now integrated into my normal life……. yes, I did use the word normal as some normality does return although my view of what is important has changed significantly.
Muscle pain does come along and yes I had pain at the bottom of my spine….. and many other areas.
This can be down to the reduction in your daily activity and your muscles forgetting what to do….. but are you getting G-CSF injections (FILGRASTIM or similar) to wake up your bone marrow and get your blood counts back up?
One of the side effect is bone pain as the injections are making the bone marrow work over time. My spine pain was not to bad, but I was told that this was down to my team prescribing Piriton or Clarityn Antihistamine as this bizarrely stopped the pain developing, these were taken as per the dose instructions - worth talking your team about this as not a lot of hospitals do this.
((hugs))
Morning Debbie , I'm Jean ( Gypsy rover) I was in hospital for 14 weeks getting my treatment , my heartbeat was at times 112-123 BPM , as I was in bed and not doing anything they kept an eye on it , the ringing in my ears never had that till I started on my treatment and I still have it , I finished my treatment in September , everything I have said to my consultant is that could be an after effect of the chemo time will tell , us chemo fighters , warriors & survivors put our body through such an ordeal it's no wonder we are picking up on changes , but no matter how big or small tell your nursing staff or Dr , Keep in touch hope the rest of your treatment goes ok , hugs for a speedy recovery Xx
Thank you so very much for responding and letting me know about your resting heart rate. I’m sorry to hear you were in hospital for 14 weeks. Well done on completing your treatment it’s a hard slog. Wishing you all the best
Hi Mike yes I’m on the injections as blood cell count was at the low end. I take piriton daily for allergies. Hugs back to you.
I was taking the full allowed daily dose of Piriton. The pain could have been worse If you were not taking them
Thank you Debbie , The nursing team would bring me 2x550 ml btls 4 times a day , when I was on my chemo I had to drink them get the chemo back out again , as you also , I lost my hair 10 days into my chemo , big shock as I didn't think I would've lost it that quick , it's growing back but a different colour , best thing for your scalp and hair is baby shampoo , I'm still using it , when I got a sore mouth I lived on ice cream and yoghurts for a week , but anything else I remember I'll tell you , take care Xx
I was on them every day for 4 months after my second Stem Cell Transplant.
I did them in the morning 39 mins after breakfast but took a couple of Paracetamol just before breakfast then went for a shower after doing the jabs
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