Hello all,
My name is Josh. I am 25 and I have recently been diagnosed with a Primary Central Nervous System Lymphoma. I just want to reach out and see if anyone else has been through this disease or any other brain cancers and how they are doing now. I need some help and motivation to move into the next steps of treatment. Would also love to hear from any young adults who have/are battling cancer as I am feeling pretty alone in the world right now!
Many thanks,
Josh
Hi again Josh and well done navigating across to our little corner of the community but always sorry to see folks finding us.
As I said in your post in the New to Community I don't have CNS Lymphoma but was diagnosed in 1999 with a rare, incurable but treatable type of NHL Stage 4a so although my blood cancer ‘type’ is different I know this journey well.
There have been a few folks with CNS Lymphoma in the group over the years so lets look for them to pick up on your post.
You can always put CNS Lymphoma into the search tool 
near the top, when the search opens hit 'everywhere' and you can see the older posts and as always you can hit reply to any of the post and see if any members are still using the site..... folks often move on once treatment is completed.
The BOLD link above are taken from the Lymphoma Action website. Lymphoma Action is a small but very active UK Lymphoma Specific Charity who have lots of good reliable information, videos and run regular Regional Lymphoma Online Support Groups including a young persons group....... LA also have a great Lymphoma Buddy Service where people can be linked up with someone who has walked the same treatment journey.
It is important for you to understand that CNS Lymphoma is not brain cancer..... brain cancer is a totally different world. Lymphoma cancer cells can basically turn up anywhere in the body....... so has resulted in there are lots of targeted treatments to cover this and I have indeed talk with others both on here and another support platform who have been treated successfully for the same Lymphoma type as yours..... so lots of hope for you to hang your het on.
This group is always around to chat and ask questions.
