Still tired a lot and bladder problems

Hi again Cornishman, I am sitting nodding my head.

I am over 6 years out from my second Stem Cell Transplant and I also am ‘going’ a good 6-8 times a day and often 1 or 2 times during the night.

I don’t see this as a bladder problem…… I have had a good number of kidney infections requiring some strong antibiotics over these 6 years so I do my best to drink a good 2 Litres of water ever day plus all the other drinks I normally have so ‘going’ is reassuring that my kidneys are doing their job.

As for the fatigue/fitness……. I would put my slow and progressive recover at about 4 years when I could say I was basically back to where I was pre treatments. I would say I am actually in a better condition (not allowing for the other treatment ‘left overs’) as my weight is in a better position.

I will say I do get slightly more tired over winter but I am sure this is down to the lack of outdoor activity.

Hi there  Highlander great to hear from  you again and thanks for your  reply, it's  good to know that we're both going through the similar  situation but,I must admit that I'm  a little  embarrassed about  my bladder problems as,mentioned before  planning trips out where I know  toilet are is important, plus going out walking in the countryside is helpful. 

Thanks again for your great advice  and take care.

Cornishman

I am exactly the same in planning before going out. My great GP (I am now discharged from both my Heamatology and SCT Consultants) says there is nothing wrong, I have had expats, scans, bloods........ "it's one of these things that you have been left with due to the shedload of treatments you have had over the years.

I have slowly developed a measure of bladder control buy not going to the loo (at home) immediately and over the past few years I have seen an improvement in my control to the point that I can do a 2 hours drive somewhere without any issues.

It's a crazy wild day up in the Highlands so no walk today - stay safe.

Great to hear you've got it under control and,you also plan you routes  when going out,I'm coming to the conclusion that it's  all in my mind as I've mentioned test  results show  nothing out of the ordinary but,it's so frustrating as you know planning ahead of trips out,also when I need to go don't have much spare time as going is quick. 

Hopefully it will sort itself out soon, I'm  off out for my daily walk down here,weather not too bad at moment but,usually soon as I'm  out it changes for the worse

Take care up there

Cornishman

Hi, 

I had my SCT in June 2020 and the battle since then has been harder than the physical side during treatment. I have found you tend to loose confidence in your body and look to second guess every ache or pain or ‘function’ that you question as not being normal! These are generally things that I’m normal times you would not have even noticed. 4 to 6 times a day…. I must have a problem also as pretty sure I go more than that and like Mike I try to drink a good 2 litres a day! I also get up about 4am for a wee! Sometimes more if a late night tea.  I honestly just think our bodies have changed slightly although because of what we have been through and the ‘what if’s’ we tend to over analyse.  I also get tired more easily and used to do long cycles …I now struggle with those although like you enjoy walking. I do now and then settle in the sofa for a tea on a Sunday afternoon and snooze and try not to feel guilty about it !

Sounds like you are doing very well!

mike 

Hi there Mike thanks for  your message and hoping you're  doing well with everything. 

After yours and Highlanders message I've  come to the conclusion that as you've  mentioned it's  just our bodies dealing with our treatment  differently so,I guessing it's  just the way we'll have to adapt to our bodies recovering from out treatments and dealing with it in our own way.

Thanks again for your message and good luck with your recovery and take care.

Cornishman