I everyone , happy New Year to everyone , Yesterday I was at Hospital getting my scan , the results come back in 7--10 days , keeping my fingers crossed that nothing has started back up and it's only side/late effects from my chemo & meds as I've been getting odd sensations on my leg more so than when I saw the consultant the end September/ beginning of October , he thought it might be my chemo or nerve damage , but since then it's got worse , night sweats & a week ago I threw up Sunday morning out of the blue , nothing warranted it but after I felt ok .... Weird . But I wish you all well & a quick recovery on your chemo .. chemo radiotherapy treatment , here's to a new year , onwards and upwards for all of us .. night night fellow warriors
Onwards and upwards is indeed the way to approach this. You can’t control the results of the PET scan so park this as best as you can.
Try to keep some simple actively going as after such a long time in hospital your body mass and muscle needs to be rebuilt.
Do you manage to see anyone at Maggie’s last week?
Happy new year to you too, Gypsy rover! May all your scans and tests come back negative, and may all side effects evaporate into the wind.
I noticed Mike mentioned Maggie's. The centre at the hospital where I am are fantastic. They have given me a lot of practical, effective help, the people there are lovely, and the space itself is very comfortable and inviting. I would definitely recommend making contact with the one in your area in the hope it's the same throughout their network.
Morning , bad day for going up to Glasgow , let alone hospital , was snowing & when I got to hospital almost 2 hours earlier than my appointment ,I sat in the car as I was trapped because of the snow/slushy mess , I sent them an email saying I was going to get a PET Scan and before I went was going to pop in and see them , no reply , On that morning i tried calling the centre numerous times but was unable to get through , so I called the PET Scan clinic to ask if someone could pop out & walk me over to the building , I said to the assistant & she said their usually busy in the mornings , I'm going to try calling them again and make sure this time they know I'm coming up , with the snow & everything nothing I could do & couldn't go after my scan , but thank you for that , I'm going to follow up on that , hope you & the family have had a good weekend , despite the weather
Morning , The one at the Beatson in Glasgow is the nearest one to me , just pity the day I went up for my scan I had left about 2 hours spare to allow me to find the building , go in , have a chat , see what's what , but the snow/slushy mess stopped me , but I'm definitely going to go back up , the way I'm feeling , need all the help I can get.. hope you & the family had a good weekend
Thanks, Gypsy rover. I actually had a rotten weekend thanks to the vicious chemo I am currently on (breast cancer, nothing to do with my lymphoma), but the well-wishing is very much appreciated.
I hope you manage to get to Maggie's soon, and when you do, could you please let us know what you thought of it? I keep recommending it to people on the strength of what I keep experiencing in my area, it would be good to hear they are just as good in Glasgow (hopefully.)
It wasn't a rotten weekend , it was a blip and a blip you'll get over cause we can both get through this together , share good days & blip days if need so.
I'm not going to leave an email saying I'm popping in , next week I'll just go up weather permitting and I'll let you know how I get on , I'd like an explanation and hopefully answers as why I'm sore and tired all the time , my hands feel as though their crippling with arthritis , same with my limbs/joints and hopefully they can give me tips through my recovery period.
The weekend is almost over & hopefully your blip also , but if needed give me a shout & I'll get back to you, positive thoughts and keep smiling , says me who was nicknamed Tiny Tears , but can laugh at it now , healing hugs to you from me & my son's Xx
Haha. My blip has been going on for 6 days now. As rotten as things still are, it's a lot better than the first three days when it just started, but it's taking longer than when this exact same thing happened last cycle. I really do NOT recommend cancer!
I hope you get the explanation you are after without too much trouble. I have faced doctors from both ends of the scale. The best was clear, articulate, fast, and gave me a lot of detailed information in a very short space of time. We established rapport rapidly and he even dropped in to see me at some point when I was in hospital and not expecting him at all. At the other end of the scale was a doctor who did her best to try and avoid or challenge my questions, kept inquiring why I wanted to know certain things, why such-and-such was important to me, blah blah. Well, I have now asked for a new doctor and was assured this would happen. So I hope yours is closer to the first one. Anyway, let us know how you get on and I hope things improve for both of us soon!
Ha ha , see I cheered you up a bit , even if it wasn't by much , you are so right , only ones that have walked down the cancer path can truly say what it's like , chemo , drugs , side effects not to mention sleep deprivation , or lastly how it can affect certain areas , before we kick cancer in the butt , it does it to us first , not funny , especially when you get a funny care nurse saying ( can you sit on that for the time being , we're a bit busy ) , I think she thought she was hilarious , but the whole team at Queen Elizabeth Hospital were fantastic from start to end , and even when I was a nightmare , although lucky me I don't remember them parts , but I've heard oh how convenient.. anytime you have a frown , pop on here & I'll try and turn it upside down..
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