Night sweats

FormerMember
FormerMember
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Afternoon all, hope everyone is doing okay. Been a while since been here. I'm now a year and few months from stem cell treatment for my NHL Tcell jobby. Pet scan and all that after was clear yey, the question I've got a for you guys - When do you think night sweats are a symptom of return? I've got no other symptoms lumps/bumps etc last bloods clear (but then again even when in full diagnosis they were) just that I've had 6 nights since the new year where the sweats have woken me not change the mattress wet but defo enough to go wake. Thanks guys and gals. 

  • Hi  and good to hear from you... a year out from SCT.l well done.

    I never experienced any night sweats before or during my years of treatments. About 2 years post my second SCT I had about two weeks of night sweats over the winter.

    I checked in with my team and nothing was found to be wrong - that was 3 years ago...... my consultants reply was “SCT can play with the bodies internal thermometer for years and at random times”

    But I would get this checked out by your team.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Yeah its that once every so often jobby so thought see if anyone else had a similar no particularly concerned. 

  • Hi Brew, I had 8 rounds of rchop for dlbc and I did have B symptoms so know what night sweats are, and that's drenching as you mention. I finished treatment in 2009 and have had nights when I have woken sweaty and know others who have experienced this as well. Also some of us have found the body struggles to regulate temperature, which could be part of the reason this happens, on a warm summers day I have found myself shivering to for no reason. 

    So whilst others have had similar experiences as Mike has suggested its always best to just check in and explain what you are experiencing.

    John 

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
  • Brew, I had  T-Cell Lymphoma that came with night sweats. They disappeared once treatment began. Several months into remission, I woke up just once to find my left forearm completely soaked. Nowhere else. When I reported this, doctor was not the least bit concerned. Our immune systems are so incredibly complicated that various anomalies occur. Night sweats did not return, even with two additional relapses, so anything is possible. However, best to let doctor make the final pronouncement. 

    ______________________________________________________________________
    One cancer (PTCL-NOS) 3 times. Two other cancers: Angioimmunoblastic T-Cell Lymphoma 2 times, and 20q deletion MyeloDysplastic Syndrome) were chemo refractory. All three cancers simultaneously in 2015. Stage IV twice + MDS @ 23% of marrow. 12/22 diagnosed with Squamous Cell Carcinoma. Thus far, 14+ years, 20 drugs, 4 clinical trials, Total Body Irradiation, 1,000+ years of background radiation from scans. 7th remission so far. Haploidentical stem cell transplant, acute > chronic Graft-versus-Host-disease. Currently receiving my 7th GvHD regimen.