DIAGNOSED TODAY

Hi again Mina .

So as I said in your post in New to Community you do need to find out the ‘exact’ type of Lymphoma you have. As you have come over to the NHL group did they say it was Non Hodgkin’s Lymphoma?

Blood cancers can basically appear any where in the body and we have had folks over the years with growths on the breast areas.

If you don’t hear by lunch time tomorrow get on the phone so you can get some more clear information as you don’t want to be left stressing over the weekend.

We’re you given a number for a Specialist Nurse?

As I said Lymphomas on the whole are very treatable, yes some treatments can be hard work but all do-able.

Another important thing to get at this stage is blood cancers are not like solid tumour cancers like breast cancer and the stage number is only an indication as to where the cancer is and as to what treatments needs to be used - I was stage 4 but this made no real difference to my prognosis,

We are always around to help out as best as we can ((hugs))

Hi Mina, over the years on various sites the have been women who have had lymphoma in the breast and if I remember correctly all went on to be in remission, most lymphomas are treatable and staging is not as important when compared to solid tumours, I was stage 4 11 years ago, I had DLBC NHL and had 8 rounds of chemo and whilst side effects became cumulative it was do-able.

Once you know the type let us know and we can share more

john

I can back up Highlander with the staging advice , although I was stage 4b my consultant was confident enough to delay my chemo for 2 months whilst I did a clinical trial of an immunotherapy drug. Worked wonders and now today I started my AVBD

Thank you Mike

I will be contacting the breast care unit today.  I was told that they could not give me answers as they were not specialists in this area but I will try anyway.   

You're so positve.  It's so lovely.

I need this now.

Mina

Thank you for this.  You hear stage 4 and you hear the worst.  Thank you for this.  So hopeful.  A clincial trial of which drug was it?   What is AVBD?  I'm new to all of this.  Another lovely post to help me.  So glad I found this.  I can't thank you enough.

Thank you John.  It's so lovely to hear.  I am delighted for you and that fact that it is doable is fabulous too.   As soon as I know more I will be on here like a shot.

You have made me able to see beyond the diagnosis.

thank you

Mina

Good morning Mina, so from what you have been saying you have not seen a Haematologist yet but a biopsy was done and came back as a type of Lymphoma?

If this is correct, you now need to be seen by a Haematologist so this is the main question that you need to be asking.

((hugs))

The trial is called Avenue you can find out about it on cancer research U.K. website, ABVD is the Chemo you will most likely be put on if it proves to be Hodgkins Lymphoma

Important at this stage to not research treatments as you have no idea what of the 60 types of Lymphoma you have.

Treatments are not generic across all types of Lymphomas with distinct differences of first line treatments used for NHL and HL ((hugs))

Thank you.  WIll resist the urge.  I have my appointment on Wednsday so will be on here like a shot.

One question, any future lockdowns won't cancel treatments will they?