Chemo brain

FormerMember
FormerMember
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It's been around six months since I finished my chemo, and four months since the end of radiotherapy, my chemo brain doesn't seem to be getting any better! It's very specifically about forgetting what I want to say, and it's created something that likes a stutter. I had nothing like this before treatment so can only think this is a long term effect?

I'm trying to do some cognitive brain training each day but it is difficult to see if it's helping. I go back to teaching in less than three weeks and it worries me that the 'stutter/pausing' will happen at work.

Does anyone have any tips or advice? The more I think about it, the worse it gets when it happens.

  • Hi , you are doing the right things. It took a good year post treatment before I could say I was over my chemo brain. Doing cognitive exercises will help but this can take longer than you would like. I kept a diary all the time as this helped me reflect and order my thoughts as I could reflect back on the stuff I was forgetting and my wife would ask me questions about my diary and get me to tell stories about random subjects just to keep my though patterns going.

    I do know a few folks who took rather longer for their chemo brain to clear, the treatments used are very strong and this is one of the leftovers from treatment that we can struggle to get over.

    Lets look fir things to improve soon but having worked in education during some of my early treatments I kept an open conversation going with my line manager as we did have to make some changes to my working pattern at times ((hugs))

    Mike

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi Jezbar,

    Like you i have been struggling with my chemo brain. When i raise it elsewhere people don't understand and that i should be gratefull.

    I am very gratefull. I also feel that i lost myself sometimes. I used to be great at many tasks at the same time. Now i really can't. When i am upset and try to talk i often stutter. I can't find the words or i can't get them out. 

    It has been almost 2 years now. I suppose it is the new me. It did get a lot better since. I can focus on one thing at the time as long i take my time. Where before i couldn't. I do a lot of crafting and i do things in sessions otherwise i make mistakes. It has been good for me to try to challenge myself, to train my brain. Things that normally are no issue can be very complicated all of a sudden. I really struggle at times. 

    Diagnosed in may 2018 with Primary Mastetic Large B-Cell Non hodgkins Lymphoma. In remission since November 2018. 
  • I'm 18 months out from chemo and still can't think of words. Everything else is fine. I can read music and play instruments, and do difficult sudoku-like puzzles just as well as before, but I cannot think of an easy word. I've been doing online live quizzes during lockdown and much of the time I know that I know an answer but cannot remember it. It's frustrating but I continue hoping it will improve.