How long does the fatigue last?

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Hi, can anyone tell me how long after Chemo does the tiredness and fatigue last for?  I am only 2 weeks after my last R-CHOP chemo for B Cell NHL, I want to start exercising in some way but not up to much yet..... would love to know your experiences?  Many thanks.

  • Hi  as always everyone will react differently.

    For some, Fatigue never goes away during and for a good period of time post treatment.

    Others find it fluctuates over treatment and for most it accumulates during treatment.

    During my first main chemo, my first nurse told me to try and keep some simple activity going. As I was in hospital for 5 days/nights for each of my 6 cycles and was connected to my chemo pumps 24/7 she told me to take them for a walk around the corridors of the ward after each meal, so I did, and my phone said I was doing 1-2 miles a day.

    I kept this going as best as I could when I was at home........ but I also slept a lot as the body does need rest.

    Do what you can but listen to your body.

    During my first Stem Cell Transplant I was doing the same but after my second Stem Cell Transplant I was in a bad way and after the 4 weeks in the unit I left in a wheelchair and had to get physiotherapy for 3-4 months to get me up and walking.

    Treatment can be that different ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thanks Mike, you are right, I will listen to my body, which is generally still worn out!   I think I am getting bored, I have done gardening and baking to death and need something else to do now., keeping busy lowers the anxiety levels and ups the Cortisol (i think its Cortisol)  I used to swim, jog, mountain bike, gym, ski, run my own business and work in a school.   I still cant fathom how you have coped with your illness, you must be an incredibly strong person, I am in awe and thankful that you can help me with my moanings!  Many thanks for your replies. J

    Julia67
    28/02/20 Started RCHOP for NHL 
    19/06/20 Finished RCHOP
  • Julie, don’t be over hard on yourself. Your body has been through stuff that it was never designed to go through so it can be hard to get up and going.

    The lockdown has made life that much harder but it will pass. My wife has also been baking with is great.... but I was put on a low protein diet because I am now classed as pre-diabetic I have to behave...... the outside of our house is looking amazing and I am in the middle of building ‘That’ deck that my long suffering wife has been talking (nagging) me about for 20 years lol

    Yes my treatment story is a long one but it’s all about doing what you need to do to live.... and as I am 4 1/2 years past the alarm bell so I am a very happy man.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge