Hi and welcome to this corner of the Community.
It’s a complete battle between the ears getting your head round having a blood cancer but not needing treatment. There are over 60 types some are very aggressive and need treated immediately but some just stay with you for a long long time and don’t need treatment.
Back in 1999 when I was 44ish I was diagnosed with a rare skin NHL and I was told “Mike this in incurable but treatable but unfortunately you will never be in remission - you need to think like this is a chronic illness like diabetes.....” and for 14 years that was it - skin treatments like bad Psoriasis but it did become aggressive (long story) but fast forward to September 2016 I was told I was in remission and my skin is perfect - RESULT....... hit my name to see my long story.
There are others with the same condition so let’s look for them to pick up on your post.
The challenge is not to over think this. I found out some ‘famous’ people had exactly the same condition as me and you would never have known and lived long, happy and very successful lives.
We are here to walk this with you and to answer any questions you have ((hugs))
Hi Becky, I took the advice of my GP and Consultant and did see it as a chronic illness.
I have friends who have Diabetes, MS and Parkinson’s and I was in a much more healthy state then them and even when things became more challenging the treatments did the job.
I am now 4 1/2 years in remission and No Evident Disease..... my friend with Diabetes will always have Diabetes and the ones with MS and Parkinson’s have progressively deteriorated over the 20+ years.
Love life - Live life..... it’s all about prospective ((hugs))
