Hi my husband is 42, we have twins nearly a year old and he was told weeks ago he had glioblastoma multiforme and weeks to live, to then now the third opinion following a biopsy and tests etc diagnosis of primary cns lymphoma. He is starting chemotherapy this week, during the misdiagnosis the tumour has increased and his confusion has got worse, I’m not able to visit him because of the current situation and can only do face time. Struggling to find words, things to say not sure how to handle things other than to be there. Any advice/ suggestions?
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Hi Heatherlee,
My husband has been in hospital in/out for last 3 weeks and is in there now with sepsis after having chemo. We’re becoming experts at this after lots of treatment over last 3 years (see my profile).
Its hard at the minute because you and me won’t be privy to everything that’s happening in hospital and what’s being said to them or what’s around their environment which is frustrating!
I arranged a telephone call with the Dr and my husband and me on one of the morning rounds last Saturday so I had an opportunity to ask questions that we’re doing my head in (some silly questions aswell as some very important ones). Maybe you should do the same if you have any questions? Because every time I spoke to my husband he has chemo brain or didn’t want to talk about cancer stuff but I needed to know!!!
We try and talk about things we want to do, holidays we want to go on, what the kids did that day, everything and anything that wasn’t to do with hospitals, cancer and treatment especially what might happen in the future Unless it was positive!
We text and call and my children FaceTime him. They draw pictures and write cards. I send jokey texts and silly emojis.
You are also going through this and trying to look after the kids, home, everything else which is hard and very tiring. I understand how much this has an affect on loved ones. I still get panic attacks and have an overwhelming sense of feeling ‘There’s nothing I can do’ which upsets me terribly. But somehow when you have young children you find a small bit of inner strength that gets you through each day.
You are his rock and there will be times when things get pushed to the limits for both of you but please draw on your love for each other and your beautiful children you have both created and that will give you the strength to get through this.
Use this blog to express how you feel or ask questions or anything it’s a release for some people.
You can and will get through this!
Diamond 
Girl 
