Methotrexate and how to handle it after completion

FormerMember over 5 years ago

4 replies
23 subscribers
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Hi folks, I have finished my R-chop and am about to be admitted for the first of two proposed high dose Methotrexate sessions..Now if there is one thing that I have found with both this and the R-chop it is that there is a wealth of information about having it, possible side effects , keeping an eye on temperature and so on, before/whilst you are having it. Tthere is much less about how to handle it after completion.

As an example, for how long do I have to be very careful due to a trashed immune system? Or , at what point do I change from informing haematology department about high temperature and switch to GP?

I appreciate that I should maybe have put this in ask an expert, but I would also like to have any input possible from people who have real experience of a similar regime and can give pointers about after it is all finished, please.

For info, 6 sessions of R-chop, three weeks apart (completed) to be followed by high dose methotrexate through a picc line. Anticipated time in ward three to six days

Thanks

Thehighlander over 5 years ago

Hi D and welcome to our cornet of the Community.

I have never had Methotrexate as part of my treatment so can't make any comment on it but there is nothing beats first hand experience, there are many other who have had it and I am sure they will pick up on your post if they are still looking into the Community.

I see in your profile (this does help other reply) that you have a type have B-Cell NHL....... we do have a dedicated Diffuse large B-cell lymphoma group as well if this fits into this area.

Always around to help as best as we can.

Mike (Thehighlander)

It always seems impossible until its done - Nelson Mandela

My cancer story

johnr over 5 years ago

Hi not sure where you are being treated so will share what I did at the end of treatment, I discussed with the consultant what they still needed to know and when did I transfer my daily care back to my GP and it was quite a simple chat with some clear steers and agreement that the GP was first point of contact. Consultant saw me 2 weekly then monthly post treatment for first 4 to 5 months then eventually moved to 3 monthly checks.

Ask the same re the methotrexate,

re weak immune system we all recover at different rates, part of your check ups with the consultant will be blood tests once it gets back in to "the range" you can relax a bit and again discuss the results at the check ups and see what they imply for you.

hope this gives you a steer

John

we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are

FormerMember over 5 years ago in reply to johnr

Hi John,

thank you for your kind reply and input.

I will indeed try to put all this into practice. My only problem is that I sometimes struggle to get a chat with the consultant. If I get to that situation again, perhaps I should trundle up and see my GP as a failsafe.

Thanks again for dropping by John, nice to 'meet; you

Best wishes

David

johnr over 5 years ago in reply to FormerMember

Hi David, if you don't get the chance to discuss this with the consultant your specialist nurse should be able to answer all the questions as that is part of their support role.

John

we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are

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Methotrexate and how to handle it after completion