Fear of lymphoma(non-hodgkin's?)

Hi  and welcome to the Community but sorry to see you finding us.

You do need to get to the bottom of the issues you are facing and the only way is to continue to work with your medical professionals. NHL can be very difficult to diagnose so you do need to be referred to a Haematologist as these are the people who deal with any type of blood cancer.

You say that your Insurance would only pay for an ultrasound..... are you in the UK?

You would need to have a CT scan and subsequent core biopsy to get the the real truth if this is actually a type of NHL.

((hugs))

Thank you so much for your reply! No I'm in the US. And I feel the same thing but here you have to be referred to see a hematologist.  So far they would only refer me to a throat doctor. And now unfortunately I no longer have insurance due to changes at work. 

Hi again, yes the US system makes this very difficult for you to find a positive way forward.

Some how you need to see a Haematologist as these are the experts in all things blood cancer.

((hugs))

I agree.  I've tried making an appointment and even offered to pay out of pocket and not use my insurance but they said a referral was needed. I'm considering going to the ER in Hope's they'll do a CT and I'll get answers

Hi Supermom. Sorry to hear about the difficulties that you are having.

 If it is of any help, I have/had B cell NHL and I shared some symptoms with you. These include weight loss and night sweats. In my own case, I was diagnosed with cancer due to blood tests and MRI scan. the first finding being of a lesion on my liver. That was followed by a whole sage, but they finally got to diagnosing the NHL once I had a biopsy..

 I wish you well in getting real action on this. Keep us posted please.

Regards

D

Hi Trainerman001, 

I have been reading the posts on this site and in particular your history. I have completed the RCHOP, 6 cycles program, and the two lots of methotrexate. I am due to start radiotherapy. 

Recently, I have started night sweating to be more specific it has happened over the last 3 nights with last night being the worst requiring me to change my clothing. This did happen to me prior to starting chemotherapy (RCHOP) but stopped.

I was wondering how you are getting on and whether night sweats is common after chemotherapy. 

Best wishes

Uhtred

Hello Uhtred,

I had night sweats before treatment and for a little while during treatment. In my case, they went away during the R-Chop cycle.

I would be interested in how you got on with the methotaxate part. For me, it was pretty bad. In particular, I ended up with really bad itchy skin, which is still with me to a degree, although not so bad. That is after a methotraxate treatment in March !

Touch wood, apart from the itch and a feeling of numbness in my feet, I seem to be well on the way to a better situation. I feel reasonably well at the moment and go back for a check up tomorrow (24th).

So it may be that the after effect I got was itching, and you have night sweats. I hope it passes soon for you and that you recover well. All the best,

David

Hi David, 

My first cycle of Methotrexate went well, and I kept with the advice given which was to clean my my regularly using chlorohexadine. They gave me Nystatin in the first of the two as I had the symptoms of a fungal infection in my mouth. In the second session, 3 weeks later, I followed the same guidance of cleaning my mouth and I was fortunate to not suffer from mouth ulcers but I was very fatigued. Between the Methotrexate events, and up to this time I have cleaned my mouth out using salty water. I still fatigue and am looking forward to it getting better. 

I hope your check up goes well for your check up. 

Thank you for your positive words that the night sweats may be a side effect of the methotrexate. I was in remission after the 4th cycle so the nurse, who I contacted via email, was baffled but will hopefully get back to me with advice from the consultant. 

Best wishes

Iain

Hi Iain,

like you, I had Nystatin but I was having that as part of my R-Chop regime as well as after the Methotraxate, Similarly, my scan after the fourth R-Chop showed remission. As you mention, the fatigue that builds up over the whole program is quite horrid !

If it helps, I get the feeling that I am a couple of months further on than yourself, and the fatigue thing is now MUCH better. I really hope that they find an answer to your night sweats and that you get a quick improvement. Good sleep is a really important part of getting better.

Thanks for your good wishes. The check up was good and next follow up is four months away, unless I detect symptoms.

Good luck and get  well soon. Keep in touch, we can always bounce ideas off each other and I would be really interested in the progress of those night sweats.

All the best

David

Hi David, 

I hope you are well and was wondering about your health. 

My night sweats stopped eventually. I only had two episodes of this and was glad that the consultant booked me in for a PET scan. I got the results back which showed no evidence of cancer. I do suffer from dull tummy aches but have experimented with changing my diet. I think it might be due to eating too many nuts. 

I am now 13 days post radiation treatment and coming upnto 2 months post HDM. My fatigue is not bad but I feel rather disorientated, like I have just come off a merry go round. Just wondering if you ever felt this. Also, I have set myself a target to walk everyday. I always feel elated after a walk but am wondering if I am doing too much as I feel flush in the face. 

How's you fatigue now and how long has it been post chemotherapy? 

Its been a really tough year for me as my marriage fell apart and we ate going througj divorce. Am lucky that I am in contact with Maggies and should have dome counselling. Everytime I write about this event I start crying but I know that its because I feel down about my circumstance and I am not looking at it logically. I have a lovely job to go back to, fantastic family and friends, and my scan results was great. Just need to change the direction of my thought patterns. 

Look forward to hearing from you

Iain