Hi and welcome to our little corner of the Community.
There have been a few on the Community who have had R-DAHP so let’s look for them to pick up on your post - you can look at their posts by putting R-DAHP into the search tool.
Sorry to hear that you are having some issues and yes, Tinnitus and hearing issues in general can be a side effect of various chemos used for NHL but normally all returns to normal once treatment is complete.
Unfortunately I was rather unlucky as one of the chemo drugs used over my long treatment journey has resulted in my Right Ear having 85% loss with remaining 15% a muffled sound with continues pulsing 24/7 and Left Ear 50 – 60% loss + Tinnitus........ but so am alive and doing very well.
What other issues are you having!
Good morning.
Low blood pressure will make your ears ring as the heart is working harder. My wife has had an unknown infection and she has been experiencing this over the past few weeks.
The Fatigue can indeed hit hard but rest up when you need - but at the same time don't let it make you sit all the time - one of the best ways to over come fatigue is some activity.
The taste!!!!......first, you have to drink lots as this flushes out the toxins in your kidneys...... my aim was 3Lt a day...... for a long time it was just water with a little squash to give a little taste, not tea or coffee. The drinking will also help your BP.
The other thing to try is fresh Pineapple and Melon - not from a tin....... it does help the taste..... but my wife hated cutting it all up ;)
Me - I am doing very well. You can see my journey by hitting my forum name Thehighlander but when I was diagnosed back in 1999 I was told I would never see remission and my rare type of NHL would get me in the end........ fast forward to Sep 2016 I was told I was in Remission and NED (No Evident Disease) - Partly Time. I am 4 years old on Monday......... 4 years since my second Stem Cell Transplant.
Always around to help out and talk.
Thank you so much for all the information you have been very helpful.
i am now in day unit of my cancer unit on a antibiotic drip as I have a urine infection and as I only have one kidney needed to be sorted pronto .
i knew I didn’t feel right yesterday which probably didn’t help the fatigue I never sit around I’m up and down like a yo yo normally.
You sound like you have really been through it but what a miracle you are good for you 
I too am due to have a stem cell transplant next step .
its fascinating what they can do now .
Many thanks again
We do have a dedicated Stem cell transplants for blood cancers group.
The SCT process is not like any other treatment and it helps to connect with people who understand what you are going through.
Are you having an Auto SCT using your own Stem Cells or an Allo SCT (this is what I had) using Stem Cells from a matched donor?
Indeed a small world....... the next time you are passing through Inverness a coffee could be on the cards.
Let’s look for you to get out of hospital and have some R&R before the next phase starts.
Yes, the site can have a lag so watch when you hit the post button to see it changes colour and the bar go across the top of your post.
Remember you can find all your old posts by hitting YOUR username where you will find your profile. Look for ‘My Lates Activity’ hit this and it will show all the posts you have put up on the site.
Do join the Stem cell transplants for blood cancers group and introduce yourself as you will connect with people who totally understand the journey you are about to go on and there may well be others who have been treated at Kings hospital London so can have some inside info.
An Auto SCT is much more straightforward and has less issues than an Allo SCT as your body will not see your Stem Cells as an attack on your body.
The idea behind SCT is to give you an all new Immune System.
An Autologous SCT (Auto) involves getting you into the position that no cancer is evident this is normally done by using chemo then your Stem Cells will be harvested. I could not do an Auto as my team could not get me cancer clean.
You may then have a few injections to help the Bone Marrow make lots of Stem Cells.
On the day of harvesting the cells two lines are put into the arms - one out, one in. Its sort of like giving blood - the blood runs into a very clever machine that brrrrs the blood round and picks out what are called undifferentiated cells (these Stem Cells have not been given a job so this is before they turn into Red or White blood cells etc) the blood returns through the line back into the blood stream.
The machine can pick out millions of cells over a 4-5 hours process.
The harvest is on the whole painless, just a lot of sitting around.
The Stem Cells are then stored until it's time to use them. The method is called cryopreservation: it freezes stem cells at temperatures below -150oC, by immersing them in nitrogen vapour. When required, they are defrosted in a water bath and are put back into the body through a central line.
Leading up to Transplant day you will have Conditioning. This is done to take down your immune system completely. This is usually done using some strong Chemo - but its only for a few days.
Once the Immune System is taken down they give the harvested Stem Cells back just like getting a blood transfusion.
The Stem Cells then go to the job centre in the Bone Marrow and ask for a job. This is the point where they become differentiated cells like Red and White blood cells...... and the all ’New You” starts as the body start to reboot the immune system and over time the blood counts come back up. Its all very cleaver, very science fiction but very do-able.
Due to the very specialised nature of a SCT it is often done in a dedicated SCT unit. It a very clean environment (Ward) in a hospital, you may get your own on-suite room but with an Auto you may well be in the same room and yes you do get visitors (some people think they have to live in a bubble) as long as every one is healthy its no problem but some units will have rules about little children.
Remember you don’t have an immune system to fight bugs during this time so safety first, but SCT teams are very good at keeping everything under control until your new immune system kids back in.
You will be an inpatient for some of the time but this all depends on how fast the ’New You’ starts to grow.
Thank you so much Mike your a mindful of information!
I will keep you posted of my progress.
Keep well have a good weekend.
jfd2165
