CAR T

Hi Lyn Lolla, exciting times, but scary at the same time. CAT T has been mentioned on the forums a few times but can’t recall anyone actually going through it, maybe johnr can remember better than me ;) 

It does sound like a SCT. In some SCTs the donor cells are treated to knock out the T Cells before being put in to the patient.

Please keep putting info into your thread as this could be like Gold to anyone looking at going down this road.

((hugs))

Thanks for the reply Mike I have also posted on SCT forum. Will keep you up to date.

Lyn x

Hi Lyn, if I remember the have been around 3 of you who have been considered at UCL, and one recently was talking about treatment at St Georges (I think I know it was not UCL) and the have been a couple at The Christie, after that the were 2 people last year from Canada who had the Yescarta treatment in the US. I then know of only one person who has documented their experience and he has just past day 130 and his treatment was for leukaemia.

Have they said which type you will get, Yescarta or Kymriah ? or will it be one of their own versions? for children treatment UCL are a world leader so you should be in good hands.

John  

Hi John, nice to hear from you. I will be having Kymriah. It's nice to know UCL is a world leader for children's treatment, I would think they are more complicated to treat than adults.  Can't say I'm looking forward to the  experience but will be glad when it starts. 

Lyn x

So THIS was in the online BBC News this morning.

Hi Like Mike I was going to post about this too, the first adult T Car treated at Kings and he was from the north east and after a bit of a journey appeared to be doing good and was in a good place.

Thanks Mike & John R ,will watch the BBC lunch time news. 

Lyn x

Lyn, the link I posted gives a good explanation of how it works..........and how much it costs....... and I thought SCT was expensive.

Thanks Mike, was very interesting. Did know most of it but it's nice to see it in laymans terms .

Lyn x

Hi lolla 

It's was really good to go through your post. I know it's been long but currently I am looking for CART therapy as I am a patient of Diffuse Large B Cell Lymphoma. Would you kindly direct me the details of the health center that administer the treatment of CAR-T Therapy. Thanks and regards

Zef