Hi everyone its cornishman here, sorry it's been a while I've had a lot of stuff too deal with and,its not only my cancer,I won't go into the other stuff but,I will speak at the cancer.
Well for those of you the don't know I've got NLPHl ,which I had my first lot of 6 chemotherapy last year,it went well and I had no side effects apart for the tiredness, well not long after I discovered another lump this time on the other side of my groin ( oops sorry forgot to mention it was in my groin area), so I saw the consultant and after a month of the lump growing a little, we decided action was needed.
It was decided that it would be chemotherapy again but a different one from before, so RCHOP was the out come,we spoke about it being the best action for me to take and,after a good chat and information given, I decided I would be the way to go. I was getting ready for it mentally and physically, got the appointment through for the chemotherapy and ready to go,then I got a call from my consultant saying that there had been a group discussion about my treatment with other consultant's and,they have suggested a different chemotherapy treatment, so we need to speak face to face so could I come up a see him next week,which I did and the different treatment was agreed to be the best way forward.
The new treatment is R-GDP ,which is what I had yesterday, as it's 230am and I can't sleep because as some if not all of you know,steroids yesterday during the treatment and for the next few days.
Sorry to go on a bit but,if anyone out there have had this treatment I would like to hear from you about your experience and, as always any helpful tips and suggestions would be a great help,thank you in advance.
Cornishman
Hi so sorry to hear you are on the treadmill again and living the steroid sleepless nights.
R-GDP has been mentioned a few times on the site over the years - put R-GDP into the search tool at the top of the page and have a look.
From the people I have talked with face to face at my Stem Cell Transplant Clinics R-GDP it’s normally used as a salvage treatment leading to a Stem Cell Transplant - has this been mentioned to you?
Yes, thought that this could be the journey that you may well go on.
As you may know, I had two Stem Cell Transplants (SCT) as this was the only remaining way for me to go forward.
If you find yourself on the SCT Journey then we do have a dedicated Stem Cell Transplant Forum where folks who are going through and have been through SCT hang out and support each other.
Always around to help out.
