All about NHL

Hello Mike, sorry its pants but our two sons have both flown the nest and live a very long way away.

So no help from the wizzkids.

I did say this blogging lark is all new to me and not really a great interest in computers

I do click View Online, this is how I am keeping up with things but will try your other suggestions.

I have just spent the last 2 hours writing up my profile, did not see any post/insert or whatever prompt.

it has now disappeared, so will not bother with that again.

Colin

https://community.macmillan.org.uk/cancer_types/non-hodgkin-lymphoma/f/non-hodgkin-lymphoma-forum/178997/all-about-nhl?Page=2#1329144

Colin as I said above click on this link or save if and it brings you to your posts and pages really simple

Colin, more pants that I can’t come round and give you a hand :)

But try the link that John has put up.

But you are doing just great. It does take time to work the site out. For us who are using it, it all feels natural but keep going as you will find the best way to use the site.

Again, all the best for tomorrow.

Hello all encouragers. thank you for your support.

1st round of chemo out of the way, process easy but the anticipation dreadful.

6 hours of sitting not easy but many must have gone through worse.

now the wait for any or what side effects?

Thank you Mike for your best wishes for todays treatment.

Colin

Hello John. thank you for your reply on finding messages and the link

you sent me, I thank yourself and all for the advice I am receiving.

most of the time though it is so hard to remove yourself from the fear bubble

you have wrapped yourself in. maybe things will get easier?

All the best Colin.

Hi Colin, good to hear your first cycle went well.

During my first cycle I sat for hours and hours expecting side effects and basically they did not come along. Then I went home and again waited for the side effects and nothing came, yes lots of sleeping but that you can work through.

I was sitting with a friend tonight and she has developing MS and I have to say I was in a much better place during most my treatments than she is in her early days of the developing illness.

So expect the unexpected and the unexpected could lead to nothing.

Well done.

Hello Mike and all.

Day after 1st chemo. Not a good nights sleep but on the steroids, maybe them?

Had hiccups before bedtime,(not normal for me) and plenty of acid reflux during night.

Have had quite a bit of indigestion today (belching) Drinking plenty but not getting

return with pee, is this normal?

Colin. 

Hi Colin, effects of the steroids yes, indigestion yes and you should be able to get something for that and yes yes to the bizarre hickups once.

Just keep an eye on not being able to pass the pee  as I did have times of fluid retention so got something to help me per for Scotland 

You should have a number for your team so always phone anything in you are not certain about.

Colin, did you get a bag of tablets to bring home and did they give something for your stomach like Omeprazol or Zantac, Mikes right if peeing is an issue let your nurse know and ring in the morning, have you tried putting your hand under the tap and running it. As for not sleeping it could be the steroids but often on the first cycle they don't cause the problems they do later on in treatment. As for hiccups they can happen to I had them for 7 of the cycles.

hope you get sorted

John  

Hello john. Thank you for all your replies. yes plenty of tablets brought back home but no omeprazol or zantac.

took some milk of magnesia last night and worked ok for acid reflux. Was on course for a good nights sleep,

Not often do I awake for a pee in the night but last night up twice, 2 days build up I think but bang went the sound

sleep, have not felt so anxious today but still plenty ahead.

I read your profile today John and have read Mike's as well, it really sounds like you have both been to hell

and back. I believe you will make the 100% club John. After reading your profiles, I must confess to feelings

of guilt, Just the small amount of treatment I have had to date put so much fear in me. I did say the other day John

that I believe everybody must be in their own fear bubble, of the unknown, loved ones and words of comfort from

family/ friends/ strangers get close to the bubble but don't quite get in.

I have felt chatting to you John and Mike and others is certainly helping, to be able to talk about concerns and

not feeling so alone, to all that have been there already and many still there.

Love and thanks to all. Colin.