Leg ache/pain

Hi Lynda and it is good to hear from you.

The body can just give a hard time and at times not give us a Scooby-doo of an idea what is going on.

I had a different treatment journey from you but I did suffer a lot of leg cramps especially at night and finger numbness for a few years post my treatments, never did get an answer apart from keep going and work through it and well it worked, not scientific but worked.

As to your questions just ask them and if they say you don't need an MRI then ask why, what would it say that a CT can not and see what they say.

((hugs))

I have an appointment for an MRI on 20th November. The leg pain and cramp is like nothing I've ever experienced before and so much worse lying down!! I'm maxing out on codeine. It's an effort to walk. I'm really hoping it's not linked to lymphoma....I had my rituximab maintenance injection 2 weeks ago and consultant seemed happy with lymph nodes. Sleep is tricky and I'm on the sofa now most nights. I'm getting right fed up, I am:(

Lxx

Hi Lynda  Sorry to hear you are suffering I have only had one rituximab injection and had cramps in the legs and lower back for a couple of days after.One thing my specialist nurse said before I started the rituximab was that if there were any problems it could be stopped as it was a maintenance regime not a treatment she has also said a couple of times I could email or call her at any time. My sleep pattern is still fairly wonky I think it is because of the fatigue as I fall asleep nearly as soon as I sit down after work and then can't sleep most of the night,  I really want to stay at work but must admit I am giving it a few months to see how things go. This is definitely a different body from a year ago!   

I'm glad you have a MRI booked as it will reassure your but the waiting game when things are out of our control is always tricky.  This message also comes from the sofa...…...thinking of you xxxx

Hi Lynda, good that you are getting this looked at.

From my journey, expereance and medical investigations these issues for me are related to the treatments I had and even now 3 years on I am still fighting through some of the pain especially in my legs and the cramp has come back over the past month but my Codeine intake is way down :) 

I would say that me persevering with my light exercise class and walking little and often has worked well for me but let's look for you to get some answers and a way forward,

The ((hugging)) Highlander ;) 

Hi Lynda

Poor you.....sorry to hear about the blasted little complications, lets hope the MRI reveals its nothing more than growing pains.

best wishes

Tina

In the last couple of weeks I've had an MRI, physio assessment who referred me on to a back and neck clicial specialist who said with the symptoms I have ( now much worse.....feels like a wooden foot with no sensation....maybe I'm turning into pinocchio)...he would have bet on L5S1 nerve root impingement. MRI showed nothing wrong with nerves or discs.....he's puzzled. Ordered nerve conduction tests....3 Jan. Bearing in mind I only complained of thigh cramp to haematologist on 29 October....I've seen 111 doctor (pain ++ weekend)....gabapentin....2 doctors at my surgery.....codeine and tramadol.....and another overnight 111 call resulting in ambulance again due to pain in leg (I'm really not a wimp when it comes to pain....it was BAD).

Tramadol is quite nice, not sure if gabapentin doing much, codeine 60mg. And paracetamol bunging me up nicely.

There are no lumps or bumps to be found and I'm 12 months since.  Rchop andd spinal methotrexate.......

Help

Lynda

Hi Lynda, sorry to see the are still know answers to what's causing your pain, I had nerve conduction tests about 5 to 6 years ago when I had my upper arm issues and it turned out to be a stenosis in the neck, the tests are interesting that is until they came to do the last one and used what I and another patient called the cattle prod, at which point I shot upwards in the chair. Good luck

John 

Oh Lynda, this is all pants as my oldest granddaughter would say.... but this would be more about her not finding her favourite unicorn :( 

Tramadol is evil....... I was wakening up seeing things climbing the walls but it did do the job on the pain side....... I was thinking of a Pinocchio joke but best not ;)

I do still have some very bad leg cramps, sort of jump out of bed in the middle of the night cramps that my wife does not see the funny side when it happens type of not happy. My simple answer is that I am not drinking water so get back to having  3-4 Lts of water a day, I know, could it be that simple - but it is for me.

Lets look for some answers when you are seen in January - I do feel for you Lynda xx

The NHS stars lined up today.....rang surgery and got.to see my own GP who I haven't seen since he referred me last June!

He was a bit shocked at the number of tablets I'm taking and referred me for medication review at the hospice tomorrow

Spinal clinician can't find anything to explain it on MRI....apart from general wear and tear all nerves look ok. He managed to bring forwards my nerve conduction tests to Xmas Eve, lol

It feels as though I'm wearing a really tight sock or strapping around my foot with numbness down the outside/lateral edge and round the heel

Oh and really uncomfortable unless i.can hang my right buttock off the chair if it's hard....as it was in wimpy today!

I Don't think it presents as a typical neuropathy (12 months after chemo but still on rituximab) in that I still have normal dorsiflexion and plantar flexion. I can't curl my toes up but I can sort of spread them out!

Just hope there's no link with lymphoma.....

Lynda xxx

hope you get some answers, and the medication review should help, I stopped taking gabapentin as like you found it was not working. The nerve testing will show what feeling is there and whether it could be neuropathy, what lovely xmas present, not.