Well, this whole journey becomes more bizarre each week ! Sorry if this is long, I've tried to condense it as much as possible. A week ago my son saw his consultant, who is a professor & clinical director of Haematology. He was told his tissue samples...
Hello, Our minds are in complete turmoil. Husband was diagnosed with Stage 4 prostate cancer in Jan 21 but PSA score is stable and he is on ongoing treatment ( ethuzalmide tablets). He has has had two polyps removed during separate colonoscopies in...
It's now 23 weeks since I last posted; my son's bone marrow biopsy was inadequate same as his needle biopsy, all the while he was getting sicker & sicker. At OP appt his consultant told us his PET scan had shown cancer also present in areas throughout...
Thank you to everybody who responded to my question about nerve damage. I have a follow up question. As anybody had RCHOP and NOT suffered nerve damage? If your nerve damage was temporary, it would be good to hear about your experience. Has anybody...
Hi, thought I'd give an update on my son. It's now 7 weeks since my son was in hospital & CT + other tests indicated he had Lymphoma. we've seen his consultant 3 times now & still waiting for staging & typing although she has confirmedLymphoma ! He's...
I have large b cell lymphoma, second time around. Last time I had Rituximab, with no real side effects. This time I have been told that I need R-CHOP. One of the side effects is nerve damage (approximately 30 to 50%) of cases due to vincristine. I’m in...
Hi all my name is Nikki and I have just been diagnosed with NMZ lymphoma.I will not be having treatment as they have told me they will watch and wait I’m feeling very anxious and just wondering if anybody else has been diagnosed with this and can give...
Further to my previous post 2 or 3 weeks ago, we have had our 1st appt with consultant now & PET scan. Consultant told us blood tests & CT did indicate malignancy & said bone marrow was involved. She also stated that due to the mistakes & delays in diagnosis...
My son (35yrs)has been admitted to hospital 3 times in last 2 years, requiring blood transfusions, iron infusions & B12. In Sept '22 after yet another admission, 3 units of blood etc etc a referral to hematology was supposedly sent from ward but nothing...
Son has lost 3st since Sept, still in awful pain, vomiting & can't eat much due to this. He's not fit enough to return to work & we have no idea when 'help' will be forthcoming, or any relief for these awful debilitating symptoms. Thank you for any h...
