Thank you to everybody who responded to my question about nerve damage. I have a follow up question. As anybody had RCHOP and NOT suffered nerve damage?
If your nerve damage was temporary, it would be good to hear about your experience.
Has anybody had vincristine and not suffered nerve damage?
I am having treatment for a large B cell lymphoma in my small bowel - 4 rounds of rituximab, followed by 4 rounds of RCHOP. The RCHOP will be over a 12 week period which will start early May.
Hi, I had Rchop about 16yrs ago (50th birthday present to myself) did not have any nerve damage or any other long term issues that I've been aware of. Though I only needed 8 doses over a six month period. Didn't work for the first week after each dose to give body recovery time, I was a self employed gardener and had very accommodating customers. I do have a very positive attitude generally though, I'm not a why me? type of person and just knuckle down and get on with life.
Issues I did have at the time were:
Only being able to read, watch tv or pc interaction for 15 mins at a time before getting agitated.
Very reduced palatable meal choices.
Could not stand the salty mouthwash (worse than the disgusting pre scan drink) so used to carefully eat half a dozen Pringles after each meal instead.
At the end of each steroid injection course I'd have a real thumper of a headache.
I think virtually everyone experiences some level or form of nerve damage. What remains is our reaction and response to it, as well as the degree of recovery. I came into this with a certain nerve deficit and things have certainly deteriorated. Having said that, I have seen improvement - virtually all eventually do. It is slow and steady. I have found that routine exercise of those bodily parts most affected will effect the most improvement.
I have come to view all of this as the "cost of living" (since I would ago have perished without all of it) and must admit that life remains worth living. We tend to fall into a mindset of worry which fears that things will not be as they were. Life certainly will be changed, but not always for the worse. We are adaptable creatures. In truth, I have gone places, met people and experienced life in a way which would never have occurred had I not received the cancer diagnosis. Actually, 4 diagnoses and holding.
As to nerves, we can fight back to achieve as much recovery as is possible. A good portion of it is a matter of resolving in your will to clamber back to the new life which waits. And it is with a newfound sense of gratitude which we often do this. Chin up! Light will eventually dispel the darkness we feel.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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