Intra-ocular Lymphoma

Hi again Starz I was looking back at your last post and apart from my reply there were no other posts but let’s look to see if there are folks looking in who have navigated the same journey.

Have you checked out the Lymphoma Action Support Platforms that I highlighted in you other post as there are folks with Ocular Lymphoma and/or CNS Lymphoma or family who are supporting family members in these groups.

Hello!

Yes. Thank you. I just wanted to see of there were any more opinions on this diagnosis now it's been confirmed. 

There is a possibility they won't treat because of Risk Benefit , but my Mum is a fighter. I just want to make sure the system doesn't just give up on her. But maybe chemo/radio will put her in more pain?

I will get in touch with lymphoma action. 

Thanks Highlander, 

Starz

Unfortunately Risk versus Benefit is a high priority and the treatments normally used for CNS Lymphoma especially chemo is rather strong.

may want to call their helpline on 0808 808 5555 where you can talk with someone and get support - open every week day from 10 till 

There is also a Lymphoma TrialsLink