You may remember me from last year regarding my son's diagnosis of lymphoma, 12 months on we're no further forward apart from his health deteriorating rapidly. Biopsies to stage & type have been inadequate & consultant is finally consulting surgeons regarding open surgery to remove some glands - his 'mass' is in upper abdominal messentary. It is now thought he also has a NET & investigations into this are happening as I type.
To add to this awful time, my husband has just been diagnosed with liver cancer. Devastated doesn't cover it & I really don't know how we are going to cope.
Hi Modge and I am so sorry to hear about your husband’s diagnosis…… I do see you have joined our dedicated Liver cancer support group where you will get great support.
I have said in the past that even although my consultant was 99% sure as to my type of Lymphoma it took a full year and 6 biopsies to get a biopsy that actually proved that he was correct….. I have talked with a good number of people who had to have surgery to get a clear biopsy and let’s look for this to be done and a way forward to be put in place.
This is indeed a challenge time for you so can I recommend that you consider joining and posting in our general cancer Carers only support group where you will connect with others navigating the exact same support challenges.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
((hugs))
Hi Modge yes a long journey ahead for you all........ you need as much care as the rest of the family so do connect in with the Carers only support group as there are some amazing people in there who have walked the exact same journey as yourself......did you check to see if you have a Maggie's near you?
Sending supportive ((hugs)) and remember that this group is always here for you to chat or just unpack stuff.
