I was only diagnosed in November. They found the liver tumours first and following Pet scan the primary was found hiding in the small bowel. I honestly haven’t been honest with myself and use my humour to distract. My work know and immediate family but no one else. I know NETs seems the unknown but. I am waiting for surgery on my bowel but no speak of radiotherapy or chemo instead just a hormone called somastatin. I have been told they cannot operate on my liver as there are too many tumours. I youngish and otherwise very healthy. I want to escape and go on holiday but the insurance is thousands. Has anyone started the road of treatment? X
Hi I’m okish. I received the phone call saying due to the intensive growth on my liver I am definitely going to be starting PRRT. I’m not sure how I feel. It’s good in one respect as hopefully it will slow the growth speed but shocked sad that they have grown enough to warrant the next line of treatment. Apparently I’ll be starting in November, but it could be earlier. I suppose I’ll just wait for my appointment to arrive. I really wanted to remain at work but work are starting to be awkward with me when I have hospital appointments and tests etc so I can only imagine what they will think when I have to tell them about the new treatment. It’s hard enough battling but to then have to battle to keep your job!! It’s very tiring.
anyway how are you? Hope you and your husband are both well and enjoying everything life can give you. Hopefully everything is going well and your husbands tumours are behaving?
thank you for your support 
it must be hard for you, family members need to look after themselves and be kind to themselves not just worry about the family members who are unwell.
