So... went for my 6 week check after latest liver resection and unfortunately was seen by a registrar who seemed incompetent and up his own ****. I asked about the grade of my tumour he looked at the screen and said nope she (pathologist) hasn’t written that down. So I asked about differentiation nope she hasn’t written that down either. What about Ki-67 - nope. OK are you referring me to a neuroendocrine specialist (I am currently under liver dept) his answer what do you mean by a neuroendocrine specialist me- someone who specialises in Neuroendocrine Cancer him - there is no such thing! Me- yes there is and there is one at this hospital - him nope there isn’t! (Annoyingly I couldn’t remember his name)He is referring me to an oncologist to maybe have some chemo - no idea why as tumour has been completely removed. Anyway after a message to a fellow patient on fb I made a phone call to Dr Anthony’s dept spoke to the clinical nurse specialist and got myself on the list to be discussed at next Neuroendocrine MDT and an appointment with the doc.
Surely we are under enough stress without having all this to contend with. I have spent 2 days feeling angry upset and worried!!! Grrrr!
UPDATE: received letter from said registrar who states my ki is high at 67. I am convinced he has not understood the ki-67 index and has taken the 67 as a reading (although I could be wrong as I know mine is high).
Would be interested in thoughts, comments and experiences.
