I was disgnoeed sed with NET . In small bowel, mesentery & pancreas in 2017. I had surgery to remove 2 in October 17. The pancreas has been under annual surveillance. My last scan 3 weeks ago has revealed the pancreas. Is stable, no spread to the liver however it is in lymph nodes in my stomach, I have to have a PET 68 scan but My local hospital have suspended them due to Covid.
I am therefore going to London, UCHL. The earliest appointment is 18th March but I have got to keep in touch for any cancellations. This scan could also reveal other spread. Please could anybody give me any information, whether you have experienced this etc. Also I have to start treatment by monthly injections? I am awaiting a letter I cannot remember the name of them.
Thanking you in anticipation
Hi
I'm sorry to read that you've recently discovered that your cancer has spread to your lymph nodes and I know what a worrying time this must be for you.
I don't have the experience you're after but I noticed that you hadn't had any replies yet. I typed 'lymph nodes' into the search bar in the group and it brought up these previous posts. You could have a read through them and respond to any of the more recent posters if you think they might be able to help you further.
Wishing you all the best
"Never regret a day in your life, good days give you happiness, bad days give you experience"
