Morning all!
My wife has been unwell a lot in recent years going through 8 years of tests and surgeries having a hysterectomy at 28 and then having exploratory surgery a year after it as it didn't help her issues to be told they found Endometriosis. Since September my wife started having a lot of pain on her right side, she started vomiting and feeling really nauseous , feeling really lethargic and her blood tests coming back that she was deficient in almost all vitamins and that she had lost loads of weight. My wife has also been flushing for years but we always put it down to her hormones etc but more recently she is extremely itchy does anyone else have this? Her doctor that is a gastrentologist told us on Friday that she has IPMN in her pancreas and that they done a carcinoid test and it came back negative but her gynaecologist also done a test (this is the doctor we love as he takes time to sit with my wife and he done the hysterectomy and found the endometriosis etc) and it came back positive
in the first test that was negative we are pretty certain she would have been taking paracetamol and we know the test can be skewed due to that however on the second one we know she definitely wasn't taking that would affect the outcome.
has this ever happened to anyone?
the gastro doctor says he doesn't think she has carcinoid however is taking her case to the MDT meeting as he believes she needs surgery to remove the IPMN but has asked her to do the urine test for carcinoid big HOWEVER the gynaecologist (doctor we love) has said he has no doubt that she has it that all her symptoms fit it and nothing else.
looking for some advice etc.
thanks in advance
Ronnie
Hi and welcome to the online community
I'm sorry to hear how much your wife has gone through in the last 8 years and that she is still undergoing tests to find out what is wrong.
I don't have any experience with IPMN (intraductal papillary mucinous neoplasm) and had to look it up to see what the initials stood for. You might be better joining and posting in the pancreatic cancer group as I noticed that there are a few people there who have discussed IPMN.
To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and post your question after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.
When you feel up to it, it would be really useful if could pop something about your wife's journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
I do hope her tests come back negative for cancer.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
