Hello everyone. I’ve just decided to join the forum to try and help me deal with myeloma and the impact. I’ve been diagnosed since December 2025 and also have a blood disorder called light chain deposition disease LCDD. Which attacks my kidneys, resulting in me being on dialysis 3 times a week too.
I think I’ve just pushed it all aside and just plodded on instead of dealing with the problem which has resulted in self destructive behaviour which I justified as “enjoying “ life because it might not be as long as I thought. Stem cell transplant happened August to September and was absolutely awful and I debated whether it was actually worth it because I felt fine beforehand in spite of the health issues.
can somebody kindly share how they managed to get to grips with it properly and just share some experiences that could help myself and themselves possibly, just with the discussion. I have a brilliant ex partner who is my best friend to talk to but I would love to be able to open up to someone and not feel some of the emotions that prevent me doing so with her.
Hope to connect with someone soon.
kind regards to everyone. Keep your chins up.
Greg
