BACK PAIN

HI  DM43     I am Vespa,   ( aka Kevin :)    i did  find my   left hip lesion pain  very   bad   walking and  sleeping,     the  steroids first round worked     well for me,  and gave me more energy,    in  conjunction with the DVTB     Cycles   1-4           the Dexamethosone   can have an effect on mood  swings,            i  am now in  hospital  post  SCT   and  on   isolation ward,     so the      treatments got me to this stage,     it is not  an  easy one,       Care plan on friday   with    help you,  and give you the chance to  raise pain concerns,         make notes before   the meeting    and take  a close family memeber,  and    ask  for clarification  on " Jargon"          i take codeine for my   pain,  but his is new to me,  and  a  sleeping pill to get me through the night    Kevin

1. Hi, sorry to hear about your back pain.  I was diagnosed last February and during my first rounds of chemo. MY back pain was unbearable .  I found I got some relief with a V pillow.  I sat up most nights in bed with this and it really did help me. Some nights I slept downstairs sat up with my pillow just to get some relief.  I hope this helps you.  

Hello DM34. , I have Myeloma and had a SCT in April.

So sorry to hear about your back pain , I know it's miserable and for me also worse at night when you can feel low and everything seems worse .

I gave up trying to sleep in bed so made my "bed" in a chair that was comfortable and allowed me to get up in the night with less pain .

Can you reach out to your Specialist Nurse on your hospital team or GP maybe .Try to let them know how you are feeling and please with this chat group you are never alone .I hope you get some relief soon x 

Sue 

Hi all,

I am feeling low.I had 12 consecutive weeks of chemo , finished 5 weeks ago.I thought I would improve after but I am so tired all the time.I broke my back 12 months ago , fractured 1 vert and shattered another.I had a consultation on Tue and was told the chemo I have endured is nothing compared to what is to follow with stem cell treatment etc.Its hard to carry on and I feel alone.On top of all that having to argue with dwp for esa which is wearing me out.Sorry but I just needed to talk ,kind regards , Mal

I am sorry to hear your still suffering unbearable pain my husband was diagnosed jan 2023 and like you had vertabre  fracture  and myeloma tumours at L4 and L3 . We purchased an electric heat pad which is set up in the bedroom and he still uses it on  daily basis and the heat seems to really help . Also try something called bio freeze it seems to confuse the pain signals so does help with relief he uses this mainly in the day time when he is active .  I think my husband was fairly lucky with his treatment the first thing they did when he was diagnosed was radiotherapy and it made such a difference to the back and leg pain he says it felt like a miracle after about 3 days and the only side effect he had was a large 6x6 square patch that is about 4 shades darker than the rest of his back ,  Please don’t worry about your stem cell transplant everyone reacts differently my husband had his in September 23 he didn’t suffer any major ill effects he stayed in ambulatory care no hospital admissions and although had a bit of a dodgy stomach (controlled by pills) he managed to eat and take gentle exercise (Walks round Regent’s Park) if your not quite as lucky they will look after you and as you get fitter and stronger it will become a distant memory.  Wishing you lots of luck and hope you manage to find relief with your pain . 

Hi

hopefully you are on top of your pain now but if not, don’t despair. I woke up one day last sept with awful back pain which just worsened daily until I was literally unable to walk and needed a wheelchair. I’m now totally pain free! This is thanks to morphine twice a day, gabapentin and of course the treatments like steroids, chemo etc and my bone strengthening drip I have monthly. 
my advice is to talk to your consultant about the pain until it is fully controlled. They are excellent and once they have the right cocktail for you, your GP can then continue to prescribe. 
all the very best in controlling this