Hi, I was diagnosed with multi-myelom in May. I've undergone chemotherapy for the past 3 months initially with severe adverse reactions. These manifested as skin rashes with severe itching, covering my whole body. I could have scratches all my skin off. This has subsided with a change in my treatments. I now suffer from insomnia sleeping maybe 2 hrs daily.
Hi DJJ999 and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about the journey you are on.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a rare, incurable but treatable type of sKIN Non Hodgkin’s Lymphoma Stage 4a so although my Blood Cancer ‘type’ is different I do appreciate the challenges of this journey rather well but not the specific treatment you are on...... especially skin problems.
I see that you have been connecting in with sme of the other threads.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too.
This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332
Always around to help more or just to chat.
