Hey I’m new here. I’m 43 female and was diagnosed with multiple myeloma in March 2021. Since then I’ve had 2 rounds of VTD followed by 3 rounds of DT Pace. Had an autologuous stem cell transplant and was confirmed in remission. In December. Just about to start 5th round of lenalidomide maintenance and bloods have decided to drop so has been a bit of a kick in the guts as I have been feeling so well on it. All positive though consultant has just suggested delaying next round by 4/5 days to give body chance to recover.
I’ve started a new job just 21 hours a week and am finding that is just enough. I still get tired and realise I have a lot more limitations than I’ve ever had but determined to live as normally as I can xx
Hi Jod and welcome to this corner of the Community although I am always sorry to see folks joining us. I noticed that your post had not received a reply yet so thought I would drop in past.
I am Mike and I help out around our various blood cancer groups. I don’t have Myeloma but was diagnosed in 1999 with a rare, incurable but treatable type of Skin NHL (CTCL) Stage 4a so although my blood cancer ‘type’ is different I know the journey rather well.
I have had two Allo (donor) Stem Cell Transplants (SCT) and about 10 months after my second SCT my bloods unexpectedly dropped and I had to have blood transfusions every week for 3 - 4 months until my bone marrow kicked back in….. I do hope that things get back on an even keel.
We do actually have a dedicated Stem cell transplant group where folks who have been through SCT share their experiences.
Mike - Thehighlander
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