My Father aged 84 got diagnosed with Myeloma in 2018 and had 14 cycles chemotherapy and some radiotherapy this year as it was in the head . No more treatment is advised now as he has severe Alzheimer’s now .
August this year he broke his leg and was told he had months to live . Previously told a few months before that he had weeks .
His mobility has really deteriorated over the last few weeks and is dragging the leg that he didn’t break !
A recent blood test shows that his para protein is 6 . Has been 14 and 7 . This is great news but I am so confused ???
Hi Ally C and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about your dad’s diagnosis and journey.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate the challenges of living with an incurable blood cancer…… although I have no answer for why your dad’s para protein is changing as it is doing…… definitely a question for your dad’s medical professionals
There are a few active members at the moment so let’s look for them to pick up on your post.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00where you will find one of team there to help you out.
We also have our Ask an Expert section but do allow a few working days for a reply.
have a few folks with Myeloma in it so worth checking.
Always around to help more or just to chat.
