Hi new here just found out my partner as myeloma which was a real shock but he been having health issues for while with his kidneys ckd stage 3 but was discharged a few weeks ago saying his kidneys are fine now which we thought was strange at the time so went back to gp to be referred back to the hospital we now found out yesterday he as myeloma and awaiting a MRI scan not sure what happens now how long we have to wait to be seen again it just the not knowing.
Hi again Bella43 and a warm welcome over to this corner of the Community although I am sorry to see you joining the group.
As I said in your first post in the New to Community I don’t have Myeloma but I was diagnosed way back in 1999 with a rare, incurable but treatable type of Non Hodgkin’s Lymphoma (Stage 4) so although my Blood Cancer ‘type’ is different I do appreciate the challenges of this journey rather well but not the specifics of (you) condition.
There have been a few new folks joined the group recently along with a few regulars so let's look the group members to pick up on your post.
You can click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at them and as always you can hit reply to any post and see if the member is still using the community.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332
Always around to help more or just to chat ((hugs))
Hi Bella, sorry to hear about your partner, but know that you are not alone, there is plenty of support for your partner, but remember there is massive support for you.
I was diagnosed afew years ago, massive shock at the time, I cried, my wife cried my children cried, everyone was upset.
I started my treatment with help and guidance from a wonderful team of doctors, nurses and others at the hospital, my particular treatment, which I decided on, was harsh, but very effective.
I am 72, initially lost about 2-3 stones, my hair thinned right out and I looked awful, not anymore, I finished my chemotherapy 18 months ago, have put my weight back on, my hair is thicker than ever and I feel very well.
My wife didn't know how to deal with me and my illness, so from my perspective, this is the best way, ....be sympathetic but not slushy, listen to everything he says and try to understand it. Encourage good eating , because chemo sometimes makes you lose your appetite, try not to dwell on the bad side, but look for good things..the treatments now are amazing, so be positive, one big thing for me is physical contact, not necessarily sexual, but touches and hugs. Keep in contact with Macmillan, they gave a fantastic support network, you can talk to someone at anytime to discuss how you and your partner are doing.
We wish you and your partner lots of 
love...
Mike
