Fed up

FormerMember over 4 years ago

3 replies
38 subscribers
2306 views

I don’t know about anyone else but I am sick of it all now I’ve had such bad treatment from medical staff that I feel I’ve just been left out in the cold I’m still waiting for harvest as it didn’t work the first time ten lockdown happened and I was told to go to Blackpool For blood test and view tod do harvest so (hour and half drive away ) to get there and be told it’s been cancelled and put off for over another month to the 27th July

I was livid that no one could have called me and then to prepare mentally for injections for harvest to not doing it I understand there is worse people that needed treatment I’ve had 3 lots of hospital appointments cancelled and no contact with my doctor My nurse blanks me and has done from the beginning I’m struggling with everything else as it is and to deal with all this mucking about is horrible and see and hear of all these others that are going ahead and just a little frustrating

really sorry for the rant but I truly feel let down and if I wasn’t so young I wouldn’t bother at all with it no ones listened to me from the start get conned off when ask questions especially when you say your in pain and the doctor makes you feel like you shouldn’t be instead of investigating it

thanks for taking the time to dead and hope I’m not the only one

stay safe
steve

pixieperson over 4 years ago

hello,

just read your post and my heart goes out to you ,i feel that anguish frustration injustice and it hurts ,you are not alone.

actually relieved to hear i am not alone with bad experiences.

i too have had problems it leaves me feeling staff doctors hospitals dont care ,have dismissive blaze attitude ,we are just a number and it makes it worse to point out things that are wrong ,i mentally broke down as a result of it all. i try not to call the team now as it makes me feel like i am a nuisance.and labeled problem person. its bad enough to deal with having cancer and treatment .

hang in there ,try to lessen the impact on yourself anyway you can, you need all your energy to get you through everyday,

FormerMember over 4 years ago in reply to pixieperson

You are not alone

I know it could consume you up into nothing I won’t let it but you hit the nail in the head there just a number your ok at the moment don’t worry oh your in pain still mmm that’s unusual

that’s what I’ve been getting people have brilliant care and don’t get me wrong I love the nhs and they have done a lot and I’ve worked for them too but even when I found out and was having chemo injection one day I timed it and it was exactly 7mins 21 sec from start to finish literally felt like a. Cattle line in out my own doctors surgery is a shambles at the moment as changing over as my doc retired so you just don’t want to bother anyone with nothing inpopped a rib muscle at start of lockdown but still unsure if I may have cracked it as doesnt seem right but that’s the way I feel

so glad to hear another voice x

greg777 over 4 years ago in reply to FormerMember

Hi Steve,

It is good to hear from you again although I wish it was in better circumstances. I have not stepped foot in a GP or hospital since COVID-19 happened (which I hope in itself gives you some comfort that all this mess you’re having to contend with now won’t be forever) so I can’t share experiences unfortunately but from what I’ve heard from people I’ve spoken to, I think things are a bit of a nightmare at the moment. Having to deal with cancer treatment is bad enough but throwing in a deadly virus on top must make things doubly difficult so I’m really feeling for you.

How are things going with your treatment? Have you managed to get a response? I’m really hoping things settle down soon as SCT can be tough enough on its own without all this extra hassle. Let’s hope the NHS are getting back on top of things now and we can see it getting back to some sort of normality really soon.

All the best

Greg

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Fed up