Face masks, COVID-19 and Multiple Myeloma Patients

Hi Ale2104p,

Thanks for raising this important topic, I for one am interested to know what other myeloma patients are being told. I have received no guidance from my medical teams although I am currently in remission and on 6 monthly check-ups, so I wasn’t expecting to receive any. Even though ours is a cancer of the antibodies, and therefore inherently you would think we were at high risk, I haven’t really considered myself to be high risk, and haven’t really done anything different to what any normal person would do to avoid the virus. I don’t know if I’m being naive or actually given my circumstances, what I am doing is fine. I’m sure if the disease is active or you’re currently undergoing treatment, I’m sure the advice is different. I’d be interested to read what others think.

Greg

Hi I have a different cancer but I do wear face masks and gloves outside.Its good a hand hygiene but the people sneezing and coughing in to my face thats why I am wearing the mask.I am on treatment and the immunity is very low I am not willing to spend even a 1 day in the hospital.

I also have antibacterial hand wipes in my handbag so I can wipe them often.

Hello I too have been wondering  about this as I'm sure we all are! A year ago I was about to return home following SCT and a year on I'm in remission and feeling fine.

My thoughts are very much with those patients undergoing treatment at the moment and in particular anyone undergoing SCT. I think I would be feeling very vulnerable..

I happened to have my four monthly  check with my consultant last week. I asked him whether I should postpone my April appointment for Zometa in order to avoid attending the hospital. He didn't seem unduly concerned about the situation. He just advised waiting to see how this all unfolds and follow the hygiene guidelines like everyone else. 

I have to keep telling myself that I went through all the treatment etc in order to live a normal life again as far as possible and not to wrap myself in cotton wool and live a solitary existence!

Hi all,

This link has been very helpfully put up in other blood cancer groups and I thought some of you might find it helpful in terms of myeloma and Coronavirus.

https://bloodwise.org.uk/blog/coronavirus-and-blood-cancer

Greg

All, 

I thought I should share the below guidance that was put up on the Myeloma UK this morning. 

https://www.myeloma.org.uk/news-and-stories/covid-19-information-hub/

Keep safe everyone!

Greg