Hi there, my mum was diagnosed with stage 3 multiple myeloma 3 weeks ago. She is still in hospital now and is in terrible pain to the point where they almost sedate her to give her respite. The bone pain is now in her back, sternam and skull. They have reviewed her pain relief daily and she's also started chemo. She looks so so poorly and her spine and has now hunched.
When you read about myeloma it's all very positive regarding pain management, living a normal life etc but I can't see this when I look at my mum. The myeloma specialist said she's a mystery and they don't know why she's in so much pain 24/7. Has anyone else had experience with myeloma like this?
Thanks for reading.
