Hi

FormerMember
FormerMember
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Hello

i hope everyone is as well as possible

I thought, I would share my experience so far in case it is familiar to anyone or its helps someone

Im a 67 year old male.

Before I started feeling out of breath in July 2021 I would have classed myself as fit and healthy for my age. Anyway, the breathless got worse in August and after ringing 111 they sent me for an ECG. The result was my heart was good but I had no air going into my right lung. This resulted in me getting admitted to A & E as an emergency case. I was fitted with a chest drain and admitted to a ward. The drain failed after a week and I had another one fitted. I had a CT scan and many X-rays during my two week stay. The second drain worked and I was discharged

4 weeks later I was sent for a follow up X-ray that showed the fluid and air was back. The doctors monitored me weekly and I was referred for another CT scan and pleurodesis surgery (talc) in December 2020. i was in hospital for 4 days and discharged with a chest drain. Three weeks later the Xray showed the lung was expanded and back in place so the drain was removed

Then the cancer bombshell was explained a week later at a follow up meeting (Yesterday) This is were I find myself now. The hospital is in the process of referring me to an oncologist and Im actively searching for information

I will keep my journey up to date in case it is useful to others

keep fighting

  • Thank you for sharing, have you had biopsies?  We are waiting for biopsy results although the doctors already seem certain they know what it is. 

  • FormerMember
    FormerMember in reply to Another day

    Hello Another Day

    Thank you for joining in

    Yes, the surgeon had the results yesterday, the confusing thing is that the doctors and surgeons thought cancer was a very low risk based on the CT scans. 

  • Well my husband had his biopsy a week ago and they say it could be up-to 2 weeks to test further to see what kind of mesothelioma it is, ie slow growing or aggressive then they will know which treatment. 3 consultants have said surgery not an option, the first go to seems to be chemo, however we are looking at immunotherapy with lower dose chemo if possible but it will depend on the oncologist & type of cancer I expect.  

  • FormerMember
    FormerMember in reply to Another day

    Thank you for sharing and best of luck with the decision making. I can appreciate it cant be easy. I will update again after my oncology meeting. Best of luck

  • Yes we can compare advice, all the best