New to this

Take a look at my profile, some of it may help 

good luck

thank you just read your profile, wow you have really been through it. How many times did you have your lungs drained 

I have peritioneal Mesothelioma, not plural however I did have fluid drained on three occasions, the fluid stopped as my treatment started to work.

thank you i thought it might be an endless draining all the time. Thank you for sharing and advising on what must be a really hard time for you 

My diagnosis was in 2016, initially  i would attend hospital to have litres- most was  3- of fluid drained. I've had two operations to stick the lung back to the lining, unfortunately both were unsuccessful. Eighteen months ago I had a chest drain fitted so that I could drain fluid at home. I drain 1/2 litre of fluid every third Day.

So sorry you find yourself on this journey too. My mum was diagnosed in April 19 - lungs filled up twice and went on to have plureodosis which sealed the lining and has worked very well. It is a devastating diagnosis to get me treatments are tough and do not always give back what you put into them. However, my mum is still here - strong and young - people out here are giving hope all the time with good survival and good responses to treatments - it’s a godsend of a site. 
Wish you and all your family the best.

Hi there, I’m really sorry you’re going through this. I notice your diagnosis was 4 years ago and I wonder have you had chemo? I hope you don’t mind me asking x 

Hello, Yes, I had two incomplete series of chemo. sessions in 2016 and 2017 and I took part in a couple of drug trials one of which I was given a placebo rather than the drug. After four years of very few symptoms, mainly the draining of fluid, since the summer the disease seems to have progressed, as the doctors say, and now, as well as the draining, I feel very tired and unwell most of the time which negatively impacts on my quality of life both physically and mentally.