hello, I’m new to the group. I have recently be diagnosed with stage 4 melanoma in my small intestine and lung and am due to start immunotherapy in 10 days. Just wondering how people have found immunotherapy, side effects etc x
I have been diagnosed stage 4 melanoma. I had my first immunitherapy last Tuesday. Nivo and Ipi. I was expecting some sort of reaction but nothing all was fine. I think you just get anxious leading up to it. Hope all goes well for you.
I'm also Stage 4, but completed my two-year immunotherapy course back in late 2024, resulting in N. E. D. (i.e. remission).
Immunotherapy is (literally) a life saver!
Lung and liver mets have been seen off, so I'm now on six-monthly CT scans and annual derrmatology reviews.
The short-term side effects during treatment were easily tolerated, however one long-term effect is that I now have secondary adrenal insufficiency, which is treated with daily low-dose hydrocortisone. Serious, but not something that affects me on a daily basis.
I know I've been lucky, but I'm not the only one - this treatment is becoming more effective each year.
