Hello,
I first had a mole on my shin back in 2023 stage 2a which was removed with surgery. It then came back end of 2024 as 3C where I had lymph node dissection, and then went on targeted treatment (dabrafenib and Trametinib) for a year which finished end of December 2025. This treatment made me quite ill so they reduced the dosis twice.
The cancer has now come back and discovered in a small lump on my thigh. Waiting for the PET scan results to see if there is more than that.
The CNS told me there is a chance they just want to do more surgery, but not give me further treatment, for example immunotherapy. The thought of not getting further treatment after it’s my second recurrence honestly makes me feel super unsafe, and makes me feel like I can then just sit and wait for it to come back and be stage 4, before they will give me immunotherapy.
Have anyone else experienced this with a similar history as stage 3C?
Thanks in advance for your input!
Sorry to hear this, I am now stage 4, started on my shoulder in 2016, misdiagnosed then went under correct treatment in 2020, removed 4 times as its come back, despite 12 months on Pembrolizumab, thyroid & pancreas affected, had metastasised in the lung first lower left lobe now upper left lobe, waiting PET scan then start treatment with nivolumab & ipilimumab
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