Not coping today wanted to say hi…

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Hello

I am New here and just wanted to connect with people who understand.  Most days I am coping well but today I feel so overwhelmed and alone. 

I have stage 3c nodular melanoma.  Large deposit found in one sentinel lymph node, but worryingly with spread outside the node.  Then results of PET scan came back.  Everything normal except ‘ill Defined area upper outer quadrant right breast’.  Terrified somehow it has got across to the breast.  Don’t know what to think or how to control my fear.  

  • I’m so sorry to hear this! I do completely understand how you’re feeling as I feel a roller coaster of emotions too. Sometimes I can be fine and then suddenly something happens and I’m crying my eyes out. The time between scans and hearing results are awful and everything goes through your head. I feel I’m damaged goods and not good enough anymore. It’s so sad as usually quite a happy person. Sorry to talk about myself but understand what you’re going through. I really hope all comes back clear for you but hope you have people around to help support even if it’s just a tight hug with no talking! Heart

  • Oh thank you for replying.  What stage are you at with things?

  • I was diagnosed in July 2024 with stage 3C melanoma cancer in my upper left torso. It had spread to my lymph nodes so have had a neck dissection to remove my lymph nodes and muscles in my neck and then another operation under my arm pit to remove my llymph nodes there (10 hour operation in total). They said some of the lymph nodes had split so I am on targeted therapy drugs for a year (ending hopefully at the end of October) but have had a few scares with CT scans along the way where they found a lump in my breast - a long wait awaiting the results but luckily all clear and then my kidneys stones have flared up again so seeing the urologist about that. Just don’t feel like I will ever be my ‘normal’ self again, but just know you’re not on your own. Where abouts are you with everything? Are you feeling better today? 

  • Oh love, this sounds hard but how strong you are, I am in awe. I called Macmillan nurse at 8am, they really are FANTASTIC.  So I feel a little calmer.  We can be ok, we will do this.  Stay in touch on here?

    xxx

  • Hello. I had Melanoma 4 years ago and a Basel Cell this year. Had numerous surgeries as part of the melanoma and obviously again this year for Basel Cell. None of this surgery was anywhere near as difficult as the mental aspect of dealing with SC and I relate to how you are feeling.
    There are many people on these forums that are here to listen, please reach out if you just need a simple chat.Thumbsup

  • THANK YOU.  I am finding this time of uncertainty so so hard to deal with.  Knowing there are people who understand just keeps me from falling off the edge.  Hearing from you, I feel I can do this.  I will do this 

  • How are you feeling at the moment Stanley523b03a?

    Hopefully this message in itself helps you know someone is thinking of how you are doing Raised hands

  • Im new to this also. It's tough but you are not alone although we all feel that from time to time...

    I have 3c acral lentiginous melanoma...

    2 operations on my foot and 2 on my knee and groin..waiting for more results..the waiting is hard and hard to hear the feedback when not positive news....

    Settling to sleep is very difficult...

    Seeing oncology for a plan tomorrow 

    Know that we are here to support each other is a real help...

    Hope you are doing ok

  • Good luck with Oncology tomorrow, everything crossed for you Pray

  • Hello, thank you for being here.  I am on the countdown to my oncology appointment on Thursday.  Had a few very difficult days but today a little brighter.  How are you?