Hi everyone, last Friday I was diagnosed with lentigo maligna melanoma, had to have the proper sit down cancer chat with the consultant and specialist cancer nurse and my wife. I think I had prepared myself for the diagnosis at the time but it hit my wife pretty hard.
I'm now waiting for WLE and SLNB and if I'm being totally honest am struggling to remain positive and focus on the likes of work. I've been keeping busy outside of work but the thought of another 8 weeks of the unknown isnt great at all. I seem to get a constant stream of NHS letters and calls (which is great in someway s, but odd and concerning when you've been generally fit and healthy in the past)
Any advice on how to deal with this period would be really appreciated. There's only so much decorating and DIY I can do!
Hello, I'm sorry to read your post, but by welcome to this group. I had my WLE SLNB 3 wks ago, I had a stage 1b melanoma (Superficial Spreading) please read my profile. Honestly I found the waiting the hardest, we are constantly waiting, it doesn't matter how much you tell yourself not to think about it, you can't, it's just there at the back of your mind. Statistically they have caught it early and the prognosis is good, but it doesn't stop you thinking and worrying. You seem to be doing the all the right things, keeping busy etc, when you've done all your jobs feel free to do mine! This group is great for sharing experiences and letting off steam, I have brilliant family but sometimes you just need to talk to others going through it. We have your back. I nearly didn't even mention my mole, id gone to the doctor to see about getting a lump on my head removed, it was only when I glanced at my ankle I thought ooh, I should get her to look at this...dread to think if I'd just left it.
Thanks Soulyboo, appreciate you taking the time to share your experience and advice.
I'm also at the RVi Newcastle and so far all of the support from GP through to consultant and cancer nurse has been excellent.
The waiting is difficult though, like you say its always at the back of your mind and woe betide waking up at 3am!! That said this morning as there was noone else in the house I built an ikea double bed and drawers....every cloud eh.
Thanks again.
Wow I'd have read the instructions and given upm but yes, no stranger to 3am wake ups. Your in good hands. Keep us updated x
Hi, last Monday I was given the all clear following WLE and Lymph node biopsies last Monday. Obviously a huge relief after what was a difficult couple of months waiting for appointments and results. The care and professionalism of staff at the RVI newcastle has been excellent and I'm sure over the coming years with regular check ups it will continue.
I have slept through the night for the last 12 nights, even sleeping in on occasions, which was a first after many sleep deprived nights.
Keeping busy and talking to good friends and family was a massive help; as was reading and hearing about peoples experiences in this forum. Good luck to anyone going through this and a big shout out to all of you for whom the news hasn't been as positive as mine, I wish you all the very best for your treatments and futures.
Thanks for being open and sharing.
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